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Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2023
Total Revenue
▼$680K
Program Spending
93%
of total expenses go to program services
Total Contributions
$677.4K
Total Expenses
▼$738.9K
Total Assets
$185.1K
Total Liabilities
▼$77.4K
Net Assets
$107.7K
Officer Compensation
→N/A
Other Salaries
$245.8K
Investment Income
$837
Fundraising
▼N/A
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$90K
Awards Found
3
| Awarding Agency | Description | Amount | Fiscal Year | Period |
|---|---|---|---|---|
| Department of Health and Human Services | PSEUDOXANTHOMA ELASTICUM RESEARCH 2010 CONFERENCE | $53K | FY2010 | Jul 2010 – Jun 2011 |
| Department of Health and Human Services | PXE INTERNATIONAL RESEARCH MEETING 2016 | $20K | FY2016 | Sep 2016 – Aug 2017 |
| Department of Health and Human Services | PXE INTERNATIONAL BIENNIAL RESEARCH SYMPOSIUM 2018 | $17K | FY2018 | Aug 2018 – Aug 2019 |
Department of Health and Human Services
$53K
PSEUDOXANTHOMA ELASTICUM RESEARCH 2010 CONFERENCE
Department of Health and Human Services
$20K
PXE INTERNATIONAL RESEARCH MEETING 2016
Department of Health and Human Services
$17K
PXE INTERNATIONAL BIENNIAL RESEARCH SYMPOSIUM 2018
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2023IRS e-File | $680K | $677.4K | $738.9K | $185.1K | $107.7K |
| 2022 | $594.2K | $593.3K | $698.2K | $422.7K | $34.1K |
| 2021 | $400K | $397K | $593.6K | $348.3K | $141K |
| 2020 | $874.9K | $872.8K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2023)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Lionel Bercovitch | Medical Director | 1 | $0 | $0 | $0 | $0 |
| Sam Harper | Director | 1 | $0 | $0 | $0 | $0 |
| Sharon Terry | CEO | 20 | $0 | $0 | $0 | $0 |
Lionel Bercovitch
Medical Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Sam Harper
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Sharon Terry
CEO
$0
Hrs/Wk
20
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Barbara Drewicz | Director | 6 | $0 | $0 | $0 | $0 |
| Claire Driscoll | Director | 4 | $0 | $0 | $0 | $0 |
| Jessica Harper | Director | 1 | $0 | $0 | $0 | $0 |
| Joseph Maas | Treasurer | 4 | $0 | $0 | $0 | $0 |
| Kathy Hersey | Director | 1 | $0 | $0 | $0 | $0 |
Barbara Drewicz
Director
$0
Hrs/Wk
6
Compensation
$0
Related Orgs
$0
Other
$0
Claire Driscoll
Director
$0
Hrs/Wk
4
Compensation
$0
Related Orgs
$0
Other
$0
Jessica Harper
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $627.9K |
| $747.9K |
| $327.7K |
| 2019 | $440.6K | $435.2K | $610.6K | $198.7K | $79.9K |
| 2018 | $284.4K | $266.5K | $402.5K | $295K | $249.3K |
| 2017 | $601.1K | $593.3K | $784.4K | $446.2K | $360.3K |
| 2016 | $842.3K | $829.8K | $386.7K | $547K | $534.1K |
| 2015 | $310.9K | $285.6K | $299.2K | $86.8K | $67.6K |
| 2014 | $292.9K | $290.5K | $293.5K | $72.7K | $55.9K |
| 2013 | $207.8K | $204.6K | $230.9K | $51.9K | $43K |
| 2012 | $319.4K | $305.7K | $334.5K | $109.7K | $52.5K |
| 2011 | $416.1K | $414K | $409.3K | $74.6K | $65.1K |
PDF not yet published by IRSView Filing → |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 2000 | 990 | — |
| 1999 | 990 | — |
| 1998 | 990 | — |
Joseph Maas
Treasurer
$0
Hrs/Wk
4
Compensation
$0
Related Orgs
$0
Other
$0
Kathy Hersey
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0