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TO ADVANCE SCIENTIFIC KNOWLEDGE AND TO INCREASE THE NUMBER OF SCIENTIFICALLY INFORMED INDIVIDUALS.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2023
Total Revenue
▼$21M
Program Spending
80%
of total expenses go to program services
Total Contributions
$18.3M
Total Expenses
▼$22.6M
Total Assets
$24.2M
Total Liabilities
▼$14.8M
Net Assets
$9.4M
Officer Compensation
→$1.6M
Other Salaries
$6.1M
Investment Income
$790
Fundraising
▼N/A
Source: USAspending.gov · Searched by organization name
VA/DoD Awards
$15.9K
VA/DoD Award Count
2
Funding from the Department of Veterans Affairs and/or Department of Defense.
Total Federal Funding
$1.4M
Awards Found
33
National Science Foundation
$836.2K
COLLABORATIVE RESEARCH: SUNY/NYAS STEM MENTORING PROGRAM STATEWIDE SCALE UP PROJECT
Department of Health and Human Services
$35K
ANIMAL MODELS AND DRUG DISCOVERY
Department of Health and Human Services
$29K
PROBIOTICS, PREBIOTICS, AND THE HOST MICROBIOME: THE SCIENCE OF TRANSLATION
Department of Health and Human Services
$28K
12TH INTERNATIONAL CONFERENCE ON MYASTHENIA GRAVIS AND RELATED DISORDERS
Department of Health and Human Services
$28K
HYPOXIA AND CONSEQUENCES: FROM MOLECULE TO MALADY
Department of Health and Human Services
$25K
BUILDING BETTER BRAINS: NEURAL PROSTHETICS AND BEYOND
Department of Health and Human Services
$25K
FOURTH INTERNATIONAL CONFERENCE ON OXIDATIVE AND NITROSATIVE STRESS IN DISEASE
Department of Health and Human Services
$25K
SIXTH ANNUAL ASPEN BRAIN FORUM: THE ADDICTED BRAIN AND NEW TREATMENT FRONTIERS
Department of Health and Human Services
$22K
TENTH COOLEY'S ANEMIA SYMPOSIUM: BASIC SCIENCE, CLINICAL RESEARCH, AND PATIENT HEALTHCARE FOR THALASSEMIA SYNDROMES.
Department of Health and Human Services
$20K
INAUGURAL CONFERENCE ON INTEGRATIVE PHYSIOLOGY
National Science Foundation
$20K
CONFERENCE: VALUES AND EMPATHY ACROSS SOCIAL BARRIERS: A NEUROCOGNITIVE APPROACH TO FAIRNESS
Department of Health and Human Services
$18K
THE BONE MARROW NICHE AND LEUKEMIA: IMPACT OF DRUGS, CHEMICALS AND ENVIRONMENT
Department of Health and Human Services
$15K
13TH INTERNATIONAL CONFERENCE ON MYASTHENIA GRAVIS AND RELATED DISORDERS
Department of Health and Human Services
$15K
ALZHEIMER'S DISEASE VIEWED AS A NEUROVASCULAR INFLAMMATORY DISORDER
Department of Health and Human Services
$15K
THROMBOLYSIS AND ACUTE STROKE TREATMENT (TAST) 2011: FORWARD TO ACUTE STROKE TRE
Department of Health and Human Services
$15K
TOWARDS PERSONALIZED CANCER MEDICINE
National Science Foundation
$15K
CONFERENCE ON SHAPING THE DEVELOPING BRAIN: PRENATAL THROUGH EARLY CHILDHOOD
National Science Foundation
$15K
THE COGNITIVE NEUROSCIENCE OF LEARNING: IMPLICATIONS FOR EDUCATION
Department of Health and Human Services
$14K
FETAL PROGRAMMING AND ENVIRONMENTAL EXPOSURES: IMPLICATIONS FOR PRENATAL CARE AND
Department of Health and Human Services
$13K
MUSIC, SCIENCE & MEDICINE: FRONTIERS IN BIOMEDICAL RESEARCH & CLINICAL APPLICATIO
Department of Defense
$10K
CONFERENCE GRANT ENTITLED-SYNTHETIC BIOLOGY APPROACHES TO IMPROVE HUMAN AND ENVIRONMENTAL HEALTH.
Department of Health and Human Services
$10K
ELEVENTH COOLEY'S ANEMIA SYMPOSIUM - ELEVENTH COOLEY’S ANEMIA SYMPOSIUM PROJECT SUMMARY THALASSEMIA SYNDROMES AFFECT AT LEAST TWO MILLION PEOPLE WORLDWIDE, AND RESEARCHERS BELIEVE THAT SEVERAL HUNDRED MILLION PEOPLE MAY BE “SILENT CARRIERS” OF A THALASSEMIA TRAIT, MAKING IT ONE OF THE MOST COMMON SINGLE- GENE DISORDERS IN HUMANS. THE ELEVENTH COOLEY'S ANEMIA SYMPOSIUM, WHICH WILL BE HELD THE CURE IN NEW YORK CITY, NY, USA ON OCTOBER 17–20, 2022, REPRESENTS THE LARGEST GLOBAL GATHERING OF THALASSEMIA EXPERTS, AND PROVIDES ONE OF THE FEW INSTANCES EACH DECADE THAT THE INTERNATIONAL RESEARCH COMMUNITY, THE PHARMACEUTICAL INDUSTRY, AND FUNDING AGENCIES DEDICATED TO FIGHTING THIS BLOOD DISORDER COME TOGETHER. THIS 3.5- DAY CONFERENCE WILL CONVENE APPROXIMATELY 250 ATTENDEES, INCLUDING SCIENTIFIC RESEARCHERS WORKING IN THE FIELDS OF MOLECULAR AND CELLULAR BIOLOGY, GENE THERAPY, AND STEM CELL DEVELOPMENT, AS WELL AS CLINICAL SPECIALISTS FROM THE FIELDS OF HEMATOLOGY, STEM CELL TRANSPLANTATION, MATERNAL-FETAL HEALTH, TRANSFUSION MEDICINE, AND PEDIATRICS, AMONG OTHERS. THE MAIN OBJECTIVES OF THIS CONFERENCE ARE TO: (I) PROVIDE A NEUTRAL FORUM FOR DISCUSSION OF EXISTING CLINICAL DATA, EMERGING STRATEGIES, AND FUTURE DIRECTIONS FOR RESEARCH AND TREATMENT OF GENETIC HEMOGLOBINOPATHIES, INCLUDING COOLEY’S ANEMIA; (II) ATTRACT/SHOWCASE EARLY CAREER AND UNDERREPRESENTED INVESTIGATORS (INCLUDING WOMEN, ETHNIC/RACIAL MINORITIES, AND PERSONS WITH DISABILITIES) VIA SHORT TALKS, POSTERS, TRAVEL FELLOWSHIPS, AND TO PROVIDE OPPORTUNITIES TO INTERACT WITH SENIOR INVESTIGATORS; (III) DISSEMINATE THE CONFERENCE PROCEEDINGS TO THE INTERNATIONAL COMMUNITY; AND (IV) FOSTER COLLABORATION BETWEEN ACADEMIA, MEDICINE, INDUSTRY, AND GOVERNMENT TO PROMOTE KNOWLEDGE EXCHANGE AND SUCCESSFUL TRANSLATION OF RESEARCH INTO IMPROVED DIAGNOSTICS AND PATIENT THERAPIES FOR THALASSEMIA AND TREATMENT-RELATED ORGAN DAMAGE. CUTTING- EDGE TOPICS TO BE DISCUSSED DURING THIS SYMPOSIUM INCLUDE GLOBIN GENE REGULATION, IRON METABOLISM, MANAGEMENT OF CLINICAL COMPLICATIONS OF THALASSEMIA INCLUDING A FOCUS ON ALPHA THALASSEMIA, A MAJOR GLOBAL HEALTH PROBLEM, ASSESSMENT AND TREATMENT OF IRON OVERLOAD, RESULTS OF ONGOING CLINICAL TRIALS OF GENE THERAPY, HEMATOPOIETIC STEM CELL TRANSPLANTATION, AND NOVEL DRUGS, AS WELL AS INNOVATIVE APPROACHES TO GENE THERAPY. THE GOALS OF THIS SYMPOSIUM STRONGLY SUPPORT THE MISSION OF THE NATIONAL HEART, LUNG, AND BLOOD INSTITUTE AND NATIONAL INSTITUTE OF DIABETES AND DIGESTIVE AND KIDNEY DISEASES IN THAT THE MEETING WILL FOCUS ON MULTIPLE PRIORITY AREAS OF NEED: TO ADVANCE HEMATOLOGY RESEARCH, TREATMENT AND CURE OF DISORDERS OF HEMOGLOBIN, AND TO IMPROVE SAFETY AND EFFICACY IN BLOOD TRANSFUSION MEDICINE — INCLUDING THE DIAGNOSIS, MANAGEMENT, AND PREVENTION OF IRON OVERLOAD AND SUBSEQUENT DAMAGE TO THE LIVER, HEART, AND ENDOCRINE SYSTEM. DISCUSSIONS ORIGINATING FROM THE CONFERENCE, AND THEIR DISSEMINATION VIA PUBLICATION IN ANNALS OF THE NEW YORK ACADEMY OF SCIENCES, WILL HAVE GLOBAL IMPACT BY IMPROVING SCIENTIFIC UNDERSTANDING, ADVANCING BREAKTHROUGH THERAPIES, AND ULTIMATELY REDUCING THE HEALTHCARE BURDEN OF THIS FAMILY OF GENETIC BLOOD DISORDERS.
Department of Health and Human Services
$10K
NINTH COOLEY'S ANEMIA SYMPOSIUM
Department of Health and Human Services
$10K
DIABETIC KIDNEY DISEASE: DRUG DISCOVERY AND CLINICAL DEVELOPMENT CHALLENGES
Department of Health and Human Services
$10K
CELL AND MOLECULAR BIOLOGY: CHROMOSOMES CANCER AND STEM CELLS
Corporation for National and Community Service
$10K
ESTIMATED TOTAL FUNDS REFER TO THE FUNDS AVAILABLE FOR CASH GRANTS WHILE ESTIMATED NUMBER OF GRANTS EQUALS TOTAL OF ALL AMERICORPS VISTA PROJECTS, TH
Department of Health and Human Services
$6,000
ADVANCES IN PLASMODIUM VIVAX MALARIA RESEARCH
Department of Defense
$5,886
4TH ANNUAL MEETING OF THE OLIGONUCLEOTIDE THERAPEUTICS SOCIETY
Department of Health and Human Services
$5,000
FOURTH ANNUAL SYMPOSIUM ON NEPHROGENIC SYSTEMIC FIBROSIS AND GADOLINIUM BASED CON
Department of Health and Human Services
$5,000
TARGETING VEGF-MEDIATED TUMOR ANGIOGENESIS IN CANCER THERAPY
Department of Health and Human Services
$3,000
PROBIOTICS: BENCH TO MARKET
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2023 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2023IRS e-File | $21M | $18.3M | $22.6M | $24.2M | $9.4M |
| 2022IRS e-File | $23.9M | $21.2M | $22.6M | $26.6M | $11.5M |
| 2021 | $18.7M | $15.6M | $19.8M | $16.3M | $8.4M |
| 2020 | $19.1M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2023)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2023)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Nicholas B Dirks | President & CEO | 35 | $717.5K | $0 | $27.4K | $744.8K |
| Giancarlo Bonagura | EVP & COO (thru 6/30/2024) | 35 | $318.4K | $0 | $28.9K | $347.3K |
| Ainsley A Goulborne | Chief Administrative Officer | 35 | $267K | $0 | $19.7K | $286.7K |
| Jerry Macarthur Hultin | Chair | 2 | $0 | $0 | $0 | $0 |
| Thomas Pompidou | Vice-chair | 2 | $0 | $0 | $0 | $0 |
| Amber Miller | Treasurer | 2 | $0 | $0 | $0 | $0 |
| Tino Van Den Heuvel | Secretary | 2 | $0 | $0 | $0 | $0 |
Nicholas B Dirks
President & CEO
$744.8K
Hrs/Wk
35
Compensation
$717.5K
Related Orgs
$0
Other
$27.4K
Giancarlo Bonagura
EVP & COO (thru 6/30/2024)
$347.3K
Hrs/Wk
35
Compensation
$318.4K
Related Orgs
$0
Other
$28.9K
Ainsley A Goulborne
Chief Administrative Officer
$286.7K
Hrs/Wk
35
Compensation
$267K
Related Orgs
$0
Other
$19.7K
Jerry Macarthur Hultin
Chair
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Thomas Pompidou
Vice-chair
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Amber Miller
Treasurer
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Tino Van Den Heuvel
Secretary
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Robin B Stephenson | Svp, Advancement | 35 | $281.3K | $0 | $25.6K | $306.9K |
| Brooke Urquhart Grindlinger | Cso, Life Sciences Conf & Awards | 35 | $257.3K | $0 | $14.8K | $272.1K |
| Douglas Braaten | Cso, Publications | 35 | $227.4K |
Robin B Stephenson
Svp, Advancement
$306.9K
Hrs/Wk
35
Compensation
$281.3K
Related Orgs
$0
Other
$25.6K
Brooke Urquhart Grindlinger
Cso, Life Sciences Conf & Awards
$272.1K
Hrs/Wk
35
Compensation
$257.3K
Related Orgs
$0
Other
$14.8K
Douglas Braaten
Cso, Publications
$257.2K
Hrs/Wk
35
Compensation
$227.4K
Related Orgs
$0
Other
$29.8K
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Aida Habtezion | Governor | 2 | $0 | $0 | $0 | $0 |
| Armen Avanessians | Governor | 2 | $0 | $0 | $0 | $0 |
| Dario Gil | Governor | 2 | $0 | $0 | $0 | $0 |
| David Ka Mordecai | Governor | 2 | $0 | $0 | $0 | $0 |
| Faye Wattleton | Governor | 2 | $0 | $0 | $0 | $0 |
| George Yancopoulous | Governor |
Aida Habtezion
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Armen Avanessians
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Dario Gil
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $15.2M |
| $23M |
| $15.7M |
| $9.5M |
| 2019 | $23.6M | $19.4M | $27.8M | $19.3M | $13.7M |
| 2018 | $27.8M | $23.6M | $27.4M | $24.3M | $18.8M |
| 2017 | $24.4M | $20.4M | $23.9M | $24.6M | $18.4M |
| 2016 | $25.2M | $21.5M | $22.4M | $25.6M | $17.6M |
| 2015 | $26.8M | $21.4M | $21.8M | $20.9M | $14.8M |
| 2014 | $14.5M | $10.7M | $18M | $18.7M | $11M |
| 2013 | $15.2M | $11.6M | $15.3M | $19.2M | $14.1M |
| 2012 | $14.7M | $10.4M | $14.3M | $19.5M | $13.8M |
| 2011 | $13.1M | $8.9M | $12.6M | $19.4M | $13.9M |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 2000 | 990 | — |
| $0 |
| $29.8K |
| $257.2K |
| Meghan Groome | Svp, Education | 35 | $192.6K | $0 | $39K | $231.6K |
| Mila Rosenthal | Executive Director,isr | 35 | $208.6K | $0 | $9,764 | $218.4K |
Meghan Groome
Svp, Education
$231.6K
Hrs/Wk
35
Compensation
$192.6K
Related Orgs
$0
Other
$39K
Mila Rosenthal
Executive Director,isr
$218.4K
Hrs/Wk
35
Compensation
$208.6K
Related Orgs
$0
Other
$9,764
| 2 |
| $0 |
| $0 |
| $0 |
| $0 |
| Grace Wang | Governor | 2 | $0 | $0 | $0 | $0 |
| Jacqueline Corbelli | Governor | 2 | $0 | $0 | $0 | $0 |
| Jeremy Wertheimer | Governor | 2 | $0 | $0 | $0 | $0 |
| Katherine Forest | Governor | 2 | $0 | $0 | $0 | $0 |
| Konstantin Shakhnovich | Governor | 2 | $0 | $0 | $0 | $0 |
| Laura Sachar | Governor | 2 | $0 | $0 | $0 | $0 |
| Lowell Robinson | Governor | 2 | $0 | $0 | $0 | $0 |
| Martin Nesbitt | Governor | 2 | $0 | $0 | $0 | $0 |
| Maryellen Elia | Governor | 2 | $0 | $0 | $0 | $0 |
| Michael W Young | Governor | 2 | $0 | $0 | $0 | $0 |
| Nadav Zafrir Thru 112023 | Governor | 2 | $0 | $0 | $0 | $0 |
| Natarajan Chandrasekaran | Governor | 2 | $0 | $0 | $0 | $0 |
| Pablo Legorreta | Governor | 2 | $0 | $0 | $0 | $0 |
| Peter Thoren | Governor | 2 | $0 | $0 | $0 | $0 |
| R May Lee | Governor | 2 | $0 | $0 | $0 | $0 |
| Ravi Kumar S | Governor | 2 | $0 | $0 | $0 | $0 |
| Reid Hoffman | Governor | 2 | $0 | $0 | $0 | $0 |
| Robert Tjian | Governor | 2 | $0 | $0 | $0 | $0 |
| Sanford I Weill | Governor | 2 | $0 | $0 | $0 | $0 |
| Seema Kumar | Governor | 2 | $0 | $0 | $0 | $0 |
| Serg Bell | Governor | 2 | $0 | $0 | $0 | $0 |
| Subra Suresh | Governor | 2 | $0 | $0 | $0 | $0 |
| Thomas C Franco | Governor | 2 | $0 | $0 | $0 | $0 |
David Ka Mordecai
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Faye Wattleton
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
George Yancopoulous
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Grace Wang
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jacqueline Corbelli
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jeremy Wertheimer
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Katherine Forest
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Konstantin Shakhnovich
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Laura Sachar
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Lowell Robinson
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Martin Nesbitt
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Maryellen Elia
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Michael W Young
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Nadav Zafrir Thru 112023
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Natarajan Chandrasekaran
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Pablo Legorreta
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Peter Thoren
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
R May Lee
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Ravi Kumar S
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Reid Hoffman
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Robert Tjian
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Sanford I Weill
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Seema Kumar
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Serg Bell
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Subra Suresh
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Thomas C Franco
Governor
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0