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THE MUCOLIPIDOSIS TYPE IV FOUNDATION OPERATES TO RAISE CONTRIBUTIONS FROM INDIVIDUALS AND COMPANIES IN ORDER TO FUND MEDICAL RESEARCH GRANTS TO FIND A CURE FOR THIS DISEASE.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$3.8M
Program Spending
99%
of total expenses go to program services
Total Contributions
$3.8M
Total Expenses
▼$3.1M
Total Assets
$2.2M
Total Liabilities
▼$3,334
Net Assets
$2.2M
Officer Compensation
→$208K
Other Salaries
$7,967
Investment Income
$0
Fundraising
▼$0
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $2.7M
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
UMass Chan Medical School | WORCESTER, MA | $1.9M | Cash | RESEARCH FOR TREATMENT OF ML4 DISEASE |
Massachussets General Hospital | Boston, MA | $717.2K | Cash | RESEARCH FOR TREATMENT OF ML4 DISEASE |
| Total | $2.7M | |||
UMass Chan Medical School
WORCESTER, MA
$1.9M
Massachussets General Hospital
Boston, MA
$717.2K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
WarningTax-exempt status was revoked on February 15, 2011
Reinstated on February 15, 2011
Exemption type: 03
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $3.8M | $3.8M | $3.1M | $2.2M | $2.2M |
| 2023IRS e-File | $1.1M | $1.1M | $656.2K | $1.5M | $1.5M |
| 2022 | $860.3K | $860.3K | $653.2K | $1M | $1M |
| 2021 | $676.5K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
Revocation status: IRS Auto-Revocation List
| Total |
|---|
| Randy Gold | President Treasurer | 5 | $0 | $0 | $0 | $0 |
| Caroline Gold | Secretary | 2 | $0 | $0 | $0 | $0 |
Randy Gold
President Treasurer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Caroline Gold
Secretary
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Rebecca Oberman | Executive Director | 40 | $213.8K | $0 | $0 | $213.8K |
Rebecca Oberman
Executive Director
$213.8K
Hrs/Wk
40
Compensation
$213.8K
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Debra Goldschmidt | Board Member | 2 | $0 | $0 | $0 | $0 |
| Michael Friedman | Board Member | 2 | $0 | $0 | $0 | $0 |
| Nathaniel Fernhoff | Board Member | 2 | $0 | $0 | $0 | $0 |
| Paula Kutner | Board Member | 2 | $0 | $0 | $0 | $0 |
Debra Goldschmidt
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Michael Friedman
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Nathaniel Fernhoff
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $676.5K |
| $715.6K |
| $839.9K |
| $839.1K |
| 2020 | $652.5K | $652.5K | $442.3K | $905.7K | $878.2K |
| 2019 | $781.9K | $781.9K | $371.5K | $669.5K | $668K |
| 2018 | $493.7K | $493.7K | $765K | $273.1K | $257.7K |
| 2017 | $499K | $499K | $526.8K | $530.6K | $528.9K |
| 2016 | $459K | $459K | $464.1K | $556.9K | $556.7K |
| 2015 | $305.8K | $305.8K | $338.7K | $561.8K | $561.8K |
| 2014 | $297.2K | $297.2K | $225.4K | $594.6K | $594.6K |
| 2013 | $223.1K | $223.1K | $209.8K | $458.9K | $458.9K |
| 2012 | $332.7K | $336.5K | $83.5K | $445.6K | $445.6K |
| 2011 | $41.5K | — | $28.8K | $196.4K | — |
| 2010 | $32.5K | — | $7,582 | $183.7K | — |
| 2009 | $38.8K | — | $56.9K | $158.9K | — |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990-EZ | Data |
| 2010 | 990-EZ | Data |
| 2009 | 990-EZ | Data |
| 2008 | 990-EZ | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 2000 | 990 | — |
Paula Kutner
Board Member
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0