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THE DYSAUTONOMIA FOUNDATION SUPPORTS AND OPERATES PROGRAMS FOCUSED ON THE MEDICAL CARE, RESEARCH, SOCIAL SERVICES, AND PUBLIC EDUCATION FOR THE BENEFIT OF PEOPLE AFFECTED BY OR AT RISK FOR FAMILIAL DYSAUTONOMIA FD.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$1.6M
Program Spending
82%
of total expenses go to program services
Total Contributions
$730.5K
Total Expenses
▼$2M
Total Assets
$1.1M
Total Liabilities
▼$263.6K
Net Assets
$833.7K
Officer Compensation
→$302.4K
Other Salaries
$143.4K
Investment Income
$53.6K
Fundraising
▼$903.3K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: GROUP
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $1.6M | $730.5K | $2M | $1.1M | $833.7K |
| 2023 | $1.2M | $572.2K | $1.9M | $1.5M | $1.3M |
| 2022 | $1.6M | $638.2K | $1.8M | $2.2M | $2M |
| 2021 | $2.4M | $1.5M | $1.9M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Lanie Etkind | Executive Dir. | 40 | $266.5K | $0 | $35.9K | $302.4K |
| Faye Ginsburg | President | 5 | $0 | $0 | $0 | $0 |
| Allan Cohen | Treasurer | 1 | $0 | $0 | $0 | $0 |
| Edward Baranoff | Vice President | 1 | $0 | $0 | $0 | $0 |
| Laurent Landau | Vice President | 1 | $0 | $0 | $0 | $0 |
| Jeffrey Goldberger | Vice President | 1 | $0 | $0 | $0 | $0 |
| Steven Kietz | Vice President | 1 | $0 | $0 | $0 | $0 |
| Lisa Newman | Vice President | 1 | $0 | $0 | $0 | $0 |
| Paul B Wexler | Vice President | 1 | $0 | $0 | $0 | $0 |
| Steven S Fass | Secretary | 1 | $0 | $0 | $0 | $0 |
Lanie Etkind
Executive Dir.
$302.4K
Hrs/Wk
40
Compensation
$266.5K
Related Orgs
$0
Other
$35.9K
Faye Ginsburg
President
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Allan Cohen
Treasurer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Edward Baranoff
Vice President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Laurent Landau
Vice President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jeffrey Goldberger
Vice President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Steven Kietz
Vice President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Lisa Newman
Vice President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Paul B Wexler
Vice President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Steven S Fass
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Brian Stillman | Director | — | $0 | $0 | $0 | $0 |
| Daniel Landau | Director | — | $0 | $0 | $0 | $0 |
| Gerald Adler | Director | 1 | $0 | $0 | $0 | $0 |
| Gregg Meyers | Director | — | $0 | $0 | $0 | $0 |
| Jennifer Sonenshein | Director | 1 | $0 | $0 | $0 | $0 |
| Rebecca Sernovitz | Director |
Brian Stillman
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Daniel Landau
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Gerald Adler
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $2.3M |
| $2.3M |
| 2020 | $1.8M | $1M | $1.8M | $1.8M | $1.8M |
| 2019 | $1.4M | $564.3K | $1.9M | $1.9M | $1.9M |
| 2018 | $2M | $622.1K | $1.8M | $2.2M | $2.2M |
| 2017 | $1.7M | $401.8K | $2.4M | $2.1M | $2.1M |
| 2016 | $1.7M | $1.6M | $1.6M | $2.8M | $2.8M |
| 2015 | $1.3M | $1.2M | $1.7M | $2.6M | $2.6M |
| 2014 | $1.9M | $1.9M | $2.3M | $3.1M | $3.1M |
| 2013 | $1.5M | $1.4M | $2.3M | $3.5M | $3.5M |
| 2012 | $2M | $2.2M | $2M | $4.2M | $4.2M |
| 2011 | $1.9M | $1.8M | $1.6M | $4.1M | $4.1M |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| — |
| $0 |
| $0 |
| $0 |
| $0 |
Gregg Meyers
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0
Jennifer Sonenshein
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Rebecca Sernovitz
Director
$0
Hrs/Wk
—
Compensation
$0
Related Orgs
$0
Other
$0