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ASSISTING PATIENTS AFFLICTED WITH AMYOTROPHIC LATERAL SCLEROSIS AND THEIR FAMILIES.
Source: IRS Form 990 (Tax Year 2025)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$719.2K
Program Spending
77%
of total expenses go to program services
Total Contributions
$717.4K
Total Expenses
▼$993.9K
Total Assets
$861K
Total Liabilities
▼$84.6K
Net Assets
$776.4K
Officer Compensation
→$100.8K
Other Salaries
$466.3K
Investment Income
$1,710
Fundraising
▼$75K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2025 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $719.2K | $717.4K | $993.9K | $861K | $776.4K |
| 2022 | $721.9K | $721.8K | $593.8K | $975.6K | $940.7K |
| 2021 | $868.4K | $868.3K | $539.3K | $889.4K | $812.6K |
| 2020 | $697.7K | $697.6K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2025 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | IRS e-File | |
| 2022 | 990 | Data |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2025)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Dawn Newburg | Executive Di | 40 | $110.8K | $0 | $0 | $110.8K |
| Melanie Maviglia | Vice Chair | 1 | $0 | $0 | $0 | $0 |
| Megan Testa | Treasurer | 1 | $0 | $0 | $0 | $0 |
| Rhonda Sanders | Secretary | 1 | $0 | $0 | $0 | $0 |
| Don Polednak | Board Chair | 2 | $0 | $0 | $0 | $0 |
Dawn Newburg
Executive Di
$110.8K
Hrs/Wk
40
Compensation
$110.8K
Related Orgs
$0
Other
$0
Melanie Maviglia
Vice Chair
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Megan Testa
Treasurer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Rhonda Sanders
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Don Polednak
Board Chair
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Alex Mylavarapu | Director | 1 | $0 | $0 | $0 | $0 |
| Angie Rozsa | Director | 1 | $0 | $0 | $0 | $0 |
| Georges Maalouf | Director | 1 | $0 | $0 | $0 | $0 |
| Jason Shullo | Director | 1 | $0 | $0 | $0 | $0 |
| Jeana Curtis | Director | 1 | $0 | $0 | $0 | $0 |
| John Houston | Director | 1 |
Alex Mylavarapu
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Angie Rozsa
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Georges Maalouf
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $559.6K |
| $537.6K |
| $483.5K |
| 2019 | $456.1K | $456.1K | $427K | $414.7K | $345.3K |
| 2018 | $463.4K | $463.4K | $438.3K | $347.2K | $320.2K |
| 2017 | $440.3K | $434.2K | $312.6K | $304.8K | $295.1K |
| 2016 | $249.9K | $249.9K | $247.4K | $199.9K | $181.8K |
| 2015 | $219.4K | $159.5K | $117.8K | $187.8K | $179.3K |
| 2014 | $168.9K | $66.2K | $214K | $82.9K | $77.6K |
| 2013 | $287K | $208.8K | $225.9K | $149.4K | $122.8K |
| 2012 | $242.7K | $252.5K | $255K | $102.9K | $61.7K |
| 2011 | $312.5K | $225.6K | $194.1K | $119.8K | $74.5K |
| 2021 | 990 | Data | PDF not yet published by IRS |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2009 | 990-EZ | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2005 | 990 | — |
| $0 |
| $0 |
| $0 |
| $0 |
| Mary Malloy | Director | 1 | $0 | $0 | $0 | $0 |
| Rick Turcaz | Director | 1 | $0 | $0 | $0 | $0 |
| Steve Arcana | Director | 1 | $0 | $0 | $0 | $0 |
| Tammie Porrello | Director | 1 | $0 | $0 | $0 | $0 |
Jason Shullo
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Jeana Curtis
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
John Houston
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Mary Malloy
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Rick Turcaz
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Steve Arcana
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Tammie Porrello
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0