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TO IMPROVE THE LIVES OF THOSE AFFECTED BY ALPORT SYNDROME THROUGH EDUCATION, EMPOWERMENT, ADVOCACY, AND FUNDING RESEARCH. THE FOUNDATIONS VISION IS TO MAKE ALPORT SYNDROME A TREATABLE DISEASE AND FIND A CURE.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$1.2M
Program Spending
91%
of total expenses go to program services
Total Contributions
$1.1M
Total Expenses
▼$1M
Total Assets
$2.8M
Total Liabilities
▼$16.5K
Net Assets
$2.8M
Officer Compensation
→$105K
Other Salaries
$242.8K
Investment Income
$131.5K
Fundraising
▼N/A
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $1.2M | $1.1M | $1M | $2.8M | $2.8M |
| 2023 | $1M | $953K | $612.5K | $2.7M | $2.6M |
| 2022 | $990.7K | $990.5K | $499.5K | $2.3M | $2.2M |
| 2021 | $993.5K | $993.5K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Lisa Bonebrake | Executive Director | 65 | $105K | $0 | $0 | $105K |
| Andrew Kronenberg | Board Chair | 10 | $0 | $0 | $0 | $0 |
| Ryan Linder | Secretary | 2.5 | $0 | $0 | $0 | $0 |
| Daniel Kilpatrick | Treasurer | 5 | $0 | $0 | $0 | $0 |
| Sharon Lagas | Co-founder, Director Past Chair | 5 | $0 | $0 | $0 | $0 |
Lisa Bonebrake
Executive Director
$105K
Hrs/Wk
65
Compensation
$105K
Related Orgs
$0
Other
$0
Andrew Kronenberg
Board Chair
$0
Hrs/Wk
10
Compensation
$0
Related Orgs
$0
Other
$0
Ryan Linder
Secretary
$0
Hrs/Wk
2.5
Compensation
$0
Related Orgs
$0
Other
$0
Daniel Kilpatrick
Treasurer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Sharon Lagas
Co-founder, Director Past Chair
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Amy Rhodes | Director | 5 | $0 | $0 | $0 | $0 |
| December West | Director | 1 | $0 | $0 | $0 | $0 |
| Marty Dunleavy | Director | 1 | $0 | $0 | $0 | $0 |
| Phillip Kumnick | Director | 1 | $0 | $0 | $0 | $0 |
| Stephen Malach | Director | 1 | $0 | $0 | $0 | $0 |
Amy Rhodes
Director
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
December West
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Marty Dunleavy
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $478K |
| $1.8M |
| $1.7M |
| 2020 | $738.6K | $738.3K | $438.3K | $1.3M | $1.2M |
| 2019 | $552K | $548.4K | $656K | $1.1M | $928.9K |
| 2018 | $807K | $803.6K | $693.8K | $1.2M | $1M |
| 2017 | $664.3K | $658.9K | $427.7K | $930.2K | $919.7K |
| 2016 | $570.8K | $574.9K | $515.3K | $772.4K | $683.1K |
| 2015 | $272K | $270.8K | $184.7K | $583.8K | $577.5K |
| 2014 | $387K | $382.4K | $248K | $492.8K | $490.2K |
| 2013 | $206.8K | $206.3K | $219.2K | $353.5K | $353.5K |
| 2012 | $274.6K | $216.6K | $169K | $365.9K | $365.9K |
| 2011 | $191K | — | $132.1K | $260.7K | — |
PDF not yet published by IRSView Filing → |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data | PDF not yet published by IRS |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990-EZ | Data |
| 2010 | 990 | — |
| 2009 | 990-EZ | — |
| 2008 | 990-EZ | — |
| 2007 | 990-EZ | — |
Phillip Kumnick
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Stephen Malach
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0