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THE MISSION OF THE CHORDOMA FOUNDATION IS TO IMPROVE THE LIVES OF THOSE AFFECTED BY CHORDOMA AND LEAD THE SEARCH FOR A CURE.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$5.4M
Program Spending
85%
of total expenses go to program services
Total Contributions
$4.9M
Total Expenses
▼$6.8M
Total Assets
$11.4M
Total Liabilities
▼$3.7M
Net Assets
$7.7M
Officer Compensation
→$924.6K
Other Salaries
$970.2K
Investment Income
$445.7K
Fundraising
▼N/A
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $2.4M
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
MEMORIAL SLOAN KETTERING CANCER31-1485731 | NEW YORK, NY | $407.9K | Cash | RESEARCH GRANT |
UNIVERSITY OF TEXAS MD ANDERSON CAN74-6001118 | HOUSTON, TX | $400K | Cash | RESEARCH GRANT |
NYU GROSSMAN SCHOOL OF MEDICINE13-5562309 | NEW YORK, NY | $325K | Cash | RESEARCH GRANT |
THE BROAD INSTITUTE INC26-3428781 | CAMBRIDGE, MA | $299.8K | Cash | RESEARCH GRANT |
START20-8313687 | SAN ANTONIO, TX | $275.6K | Cash | RESEARCH GRANT |
CANCER RESEARCH INSTITUTE13-1837442 | NEW YORK, NY | $250K | Cash | RESEARCH GRANT |
AMERICAN ASSN FOR CANCER RESEARCH23-3100004 | PHILADELPHIA, PA | $138.1K | Cash | RESEARCH GRANT |
CHILDREN'S HOSPITAL OF PHILADELPHIA23-1352166 | PHILADELPHIA, PA | $84.7K | Cash | RESEARCH GRANT |
MASSACHUSETTS GEN HOSPITAL | BOSTON, MA | $56.5K | Cash | RESEARCH GRANT |
UPMC DEPARTMENT OF NEUROSURGERY23-2919472 | PITTSBURG, PA | $50K | Cash | RESEARCH GRANT |
CEDARS SINAI MEDICAL CENTER95-1644600 | LOS ANGELES, CA | $50K | Cash | RESEARCH GRANT |
THE MEDICAL COLLEGE OF WISCONSIN39-0806261 | MILWAUKEE, WI | $50K | Cash | RESEARCH GRANT |
REDESIGN SCIENCE INC82-3078352 | NEW YORK, NY | $15K | Cash | RESEARCH GRANT |
| Total | $2.4M | |||
NEW YORK, NY
$407.9K
HOUSTON, TX
$400K
NEW YORK, NY
$325K
CAMBRIDGE, MA
$299.8K
SAN ANTONIO, TX
$275.6K
NEW YORK, NY
$250K
PHILADELPHIA, PA
$138.1K
PHILADELPHIA, PA
$84.7K
MASSACHUSETTS GEN HOSPITAL
BOSTON, MA
$56.5K
PITTSBURG, PA
$50K
LOS ANGELES, CA
$50K
MILWAUKEE, WI
$50K
NEW YORK, NY
$15K
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$40K
Awards Found
2
| Awarding Agency | Description | Amount | Fiscal Year | Period | Link |
|---|---|---|---|---|---|
| Department of Health and Human Services | FOURTH INTERNATIONAL CHORDOMA RESEARCH WORKSHOP (ICRW) | $20K | FY2013 | Mar 2013 – Feb 2014 | Open → |
| Department of Health and Human Services | THIRD INTERNATIONAL CHORDOMA RESEARCH WORKSHOP: CATALYZING NEW ADVANCES IN CHORDO | $20K | FY2011 | Mar 2011 – Dec 2011 | Open → |
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $5.4M | $4.9M | $6.8M | $11.4M | $7.7M |
| 2023IRS e-File | $7.4M | $7.2M | $4.6M | $11M | $9.2M |
| 2022 | $4.9M | $4.8M | $3.1M | $7.6M | $6.2M |
| 2021 | $3.1M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Josh Sommer | Exec. Dir. & | 50 | $174.2K | $0 | $28.6K | $202.7K |
Josh Sommer
Exec. Dir. &
$202.7K
Hrs/Wk
50
Compensation
$174.2K
Related Orgs
$0
Other
$28.6K
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Kenny Brighton | Head Of Phil | 40 | $216.4K | $0 | $13.2K | $229.6K |
| Daniel Freed | Chief Scient | 40 | $204.3K | $0 | $23.2K | $227.6K |
| Sara Nick | Head Of Enga | 40 | $142.8K | $0 | $9,699 |
Kenny Brighton
Head Of Phil
$229.6K
Hrs/Wk
40
Compensation
$216.4K
Related Orgs
$0
Other
$13.2K
Daniel Freed
Chief Scient
$227.6K
Hrs/Wk
40
Compensation
$204.3K
Related Orgs
$0
Other
$23.2K
Sara Nick
Head Of Enga
$152.5K
Hrs/Wk
40
Compensation
$142.8K
Related Orgs
$0
Other
$9,699
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Alicia Jeffreys | Director | 2 | $0 | $0 | $0 | $0 |
| Christopher Heery | Director | 2 | $0 | $0 | $0 | $0 |
| David Sandak | Chair | 2 | $0 | $0 | $0 | $0 |
| John Therien | Director | 2 | $0 | $0 | $0 | $0 |
| Lauren Mulholland | Director | 2 | $0 | $0 | $0 | $0 |
| Leslie Adler | Director |
Alicia Jeffreys
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Christopher Heery
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
David Sandak
Chair
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $3M |
| $3.4M |
| $6.5M |
| $4.4M |
| 2020 | $2.5M | $2.5M | $2.5M | $6.3M | $4.7M |
| 2019 | $5.2M | $5.2M | $3.9M | $7.2M | $4.7M |
| 2018 | $2.4M | $2.4M | $2.3M | $4.5M | $3.5M |
| 2017 | $2.1M | $2M | $2.9M | $4.8M | $3.4M |
| 2016 | $4.2M | $4.1M | $2.3M | $5.3M | $4.1M |
| 2015 | $1.9M | $1.9M | $1.4M | $2.8M | $2.3M |
| 2014 | $2M | $2M | $1.7M | $2.4M | $1.8M |
| 2013 | $1.6M | $1.6M | $912.1K | $1.7M | $1.4M |
| 2012 | $788.1K | $780.7K | $643.9K | $833.9K | $727.9K |
| 2011 | $615.2K | $584.4K | $607.9K | $679.8K | $583.6K |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| $152.5K |
| Shannon Lozinsky | Director Of | 40 | $121.7K | $0 | $17.9K | $139.6K |
| Lee Dolat | Scientist | 40 | $112.5K | $0 | $15.6K | $128.1K |
| Sai Perveen Chemudupati | Director Of | 40 | $105.3K | $0 | $11.3K | $116.6K |
| Jesse Bongartz | Head Of Fina | 40 | $100.9K | $0 | $11.2K | $112.1K |
Shannon Lozinsky
Director Of
$139.6K
Hrs/Wk
40
Compensation
$121.7K
Related Orgs
$0
Other
$17.9K
Lee Dolat
Scientist
$128.1K
Hrs/Wk
40
Compensation
$112.5K
Related Orgs
$0
Other
$15.6K
Sai Perveen Chemudupati
Director Of
$116.6K
Hrs/Wk
40
Compensation
$105.3K
Related Orgs
$0
Other
$11.3K
Jesse Bongartz
Head Of Fina
$112.1K
Hrs/Wk
40
Compensation
$100.9K
Related Orgs
$0
Other
$11.2K
| 2 |
| $0 |
| $0 |
| $0 |
| $0 |
| Megan Stewart | Director | 2 | $0 | $0 | $0 | $0 |
| Paul Feldman | Director | 2 | $0 | $0 | $0 | $0 |
| Shreyaskumar Patel | Director | 2 | $0 | $0 | $0 | $0 |
| Steven Golick | Director | 2 | $0 | $0 | $0 | $0 |
| Steven Mandel | Director | 2 | $0 | $0 | $0 | $0 |
| Susan Mahony | Director | 2 | $0 | $0 | $0 | $0 |
John Therien
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Lauren Mulholland
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Leslie Adler
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Megan Stewart
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Paul Feldman
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Shreyaskumar Patel
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Steven Golick
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Steven Mandel
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Susan Mahony
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0