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EPILEPSY FOUNDATION NEW ENGLAND'S (EFNE) MISSION IS TO IMPROVE THE LIVES OF PEOPLE AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION.
Source: IRS Form 990 (Tax Year 2025)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$7.5M
Program Spending
68%
of total expenses go to program services
Total Contributions
$2.1M
Total Expenses
▼$6.8M
Total Assets
$15.4M
Total Liabilities
▼$1.5M
Net Assets
$13.8M
Officer Compensation
→$552.4K
Other Salaries
$3.2M
Investment Income
$507.6K
Fundraising
▼$113.2K
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $150K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
BETH ISRAEL DEACONESS MEDICAL CENTER | CHARLESTOWN, MA | $75K | Cash | RESEARCH |
CHILDREN'S HOSPITAL CORPORATION | BOSTON, MA | $75K | Cash | RESEARCH |
| Total | $150K | |||
BETH ISRAEL DEACONESS MEDICAL CENTER
CHARLESTOWN, MA
$75K
CHILDREN'S HOSPITAL CORPORATION
BOSTON, MA
$75K
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$4.8M
Awards Found
2
Corporation for National and Community Service
$3.3M
THIS AWARD FUNDS THE APPROVED 2022?23 PUBLIC HEALTH AMERICORPS PROGRAM. NO MEMBER MAY ENROLL PRIOR TO THE APPROVED START DATE OF THE MEMBER ENROLLMENT PERIOD. YOUR 2022?23 REGULATORY MATCH IS 0%. EPILEPSY FOUNDATION NEW ENGLAND PROPOSES TO HAVE 56 AMERICORPS MEMBERS WHO WILL SERVE AS EPILEPSY RESOURCE ROOM COORDINATORS THAT PROVIDE COMMUNITY HEALTH WORKER SERVICES IN 16 HOSPITALS AND HEALTH CARE INSTITUTIONS IN CT, MA, ME, NH, RI, AND VT. AT THE END OF THE FIRST PROGRAM YEAR, THE AMERICORPS MEMBERS WILL BE RESPONSIBLE FOR INCREASING THE HEALTH KNOWLEDGE OF 2,053 AND IMPROVING THE HEALTH OF 678 PEOPLE. IN ADDITION, THE AMERICORPS MEMBERS WILL LEVERAGE 150 VOLUNTEERS WHO WILL BE ENGAGED IN SUPPORTING HEALTH EDUCATION EVENTS, SUPPORT GROUPS, AND COMMUNITY RECREATION FOR PEOPLE LIVING WITH DISABILITIES. AFTER THEIR YEAR OF SERVICE, 30 AMERICORPS MEMBERS WILL PURSUE FUTURE ENGAGEMENT IN THE PUBLIC HEALTH SECTOR.
Department of Health and Human Services
$1.5M
IMPROVING QUALITY OF LIFE AND HEALTH EQUITY FOR PEOPLE LIVING WITH EPILEPSY THROUGH MULTI-SECTOR PARTNERSHIPS IN MA, ME, NH, AND RI - EPILEPSY FOUNDATION NEW ENGLAND?S (EFNE) EQOL PROJECT, ?IMPROVING QUALITY OF LIFE AND HEALTH EQUITY FOR PEOPLE LIVING WITH EPILEPSY THROUGH MULTI-SECTOR PARTNERSHIPS,? WILL STRENGTHEN THE HEALTH SYSTEM AND IMPROVE QUALITY OF LIFE FOR PEOPLE LIVING WITH EPILEPSY IN MA, ME, NH, AND RI ? ESPECIALLY THOSE WITH UNCONTROLLED SEIZURES ? BY ADVANCING 1:1 CARE MANAGEMENT SERVICES FOR 1,000 PEOPLE PER YEAR IN EPILEPSY RESOURCE ROOMS AT 11 EPILEPSY CENTERS AND 4 EFNE OFFICES (SPREADING TO COMMUNITY HOSPITALS AND NEUROLOGISTS IN YEARS 3 AND BEYOND) BY (A) IMPLEMENTING AN ELECTRONIC, MULTIDIRECTIONAL COMMUNICATION, DATA COLLECTION, AND REFERRAL SYSTEM TO SUPPORT CLIENTS' PHYSICAL, BEHAVIORAL, AND SOCIAL NEEDS' ECOSYSTEMS; (B) BUILDING DATA-DRIVEN LINKAGES FOR PATIENTS BETWEEN CLINICAL SERVICES AND A REPOSITORY OF USEFUL COMMUNITY SERVICES, SOCIALIZATION PROGRAMS, AND SELF-MANAGEMENT PROGRAMS; AND (C) EQUIPPING RESOURCE ROOM COORDINATORS WITH CARE MANAGEMENT AND BASIC SOCIAL WORK SKILLS, COMMUNITY HEALTH WORKER TRAINING, AND INFORMATION/REFERRAL RESOURCES, INCLUDING THE ABILITY TO QUALIFY PATIENTS FOR SELF-MANAGEMENT PROGRAMS. EQOL WILL INCREASE (1) NUMBER OF PEOPLE LIVING WITH EPILEPSY COMPLETING EVIDENCE-BASED EPILEPSY-SELF-MANAGEMENT PROGRAMS; (2) REPORTING, MONITORING, AND TRACKING OF CLINICAL DATA BY HEALTH SYSTEMS TO IMPROVE IDENTIFICATION, MANAGEMENT, AND TREATMENT OF PATIENTS WITH UNCONTROLLED SEIZURES; AND (3) REFERRALS TO COMMUNITY-BASED SERVICES, SELF-MANAGEMENT PROGRAMS, AND/OR HEALTH CARE PROVIDERS. THE PROJECT LEVERAGES $750,000/YEAR IN AMERICORPS FUNDING THAT SUPPORTS 40 EPILEPSY RESOURCE ROOM COORDINATORS. EQOL IS ALIGNED WITH THE EPILEPSY LEARNING HEALTH SYSTEM, WHICH IT BOTH LEVERAGES AND ENHANCES. EQOL WILL IMPROVE THE ECOSYSTEM FOR PEOPLE LIVING WITH EPILEPSY BY CONNECTING PEOPLE WITH EFNE?S SOCIAL SUPPORTS AND RECREATIONAL PROGRAMS, WITH SELF-MANAGEMENT PROGRAMS, AND WITH COMMUNITY-BASED SOCIAL PROGRAMS THROUGH DOCUMENTED REFERR ALS. EQOL WILL ADDRESS SOCIAL DETERMINANTS OF HEALTH TO IMPROVE QUALITY OF LIFE FOR PEOPLE WITH EPILEPSY BY IDENTIFYING RESOURCES IN THE ECOSYSTEM IN WHICH PEOPLE WITH EPILEPSY LIVE, LEARN, WORK, PLAY, WORSHIP, AND AGE THAT AFFECT A WIDE RANGE OF HEALTH, FUNCTIONING, AND QUALITY OF LIFE OUTCOMES, INCLUDING UNCOVERING UNDERUTILIZED RESOURCES. EQOL IS A MULTISECTOR PARTNERSHIP WITH SUPPORT FROM PEOPLE LIVING WITH EPILEPSY, EVERY EPILEPSY CENTER IN THE EFNE REGION (MA, ME, NH, AND RI), EF OF AMERICA AND OTHER NATIONAL ORGANIZATIONS, AND MULTIPLE COMMUNITY PARTNERS. EQOL IS A ?COMPONENT B? APPLICATION ADDRESSING STRATEGIES 3 AND 4.
Source: Federal Audit Clearinghouse (fac.gov)
Total Audits
3
Clean Audits
2
Material Weakness
Yes
Noncompliance Issues
No
| Year | Status | Financial Report | Federal Expenditure | Low Risk | Accepted |
|---|---|---|---|---|---|
| 2025 | Clean | Unmodified (Clean) | $1.1M | No | 2025-12-23 |
| 2024 | Material Weakness | Unmodified (Clean) | $1.5M | No | 2024-11-29 |
| 2023 | Clean | Unmodified (Clean) | $1.5M | No | 2023-11-29 |
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.1M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.5M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.5M
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $7.5M | $2.1M | $6.8M | $15.4M | $13.8M |
| 2023IRS e-File | $7.4M | $2.5M | $6.5M | $13.9M | $12.3M |
| 2022 | $6M | $1.4M | $4.7M | $9.1M | $8.8M |
| 2021 | $6.4M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2025 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2024 | 990 | DataIRS e-File | |
| 2023 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Susan Linn | Former President & CEO - Efne Thru May25 | 50 | $278.9K | $0 | $19.1K | $298K |
| Bradley Rich | President - Dc | 1 | $0 | $260.7K | $10.4K | $271.1K |
| Jason Bourque | Clerk | 0.4 | $0 | $0 | $0 | $0 |
| Marc Firenze | Former Vice Chair | 0.4 | $0 | $0 | $0 | $0 |
| Alison Zetterquist | Chair | 0.4 | $0 | $0 | $0 | $0 |
| Tim Young | Treasurer | 0.4 | $0 | $0 | $0 | $0 |
| Kimberlee Schumacher | Interim-president & CEO Beginning Jun25 | 40 | $0 | $0 | $0 | $0 |
Susan Linn
Former President & CEO - Efne Thru May25
$298K
Hrs/Wk
50
Compensation
$278.9K
Related Orgs
$0
Other
$19.1K
Bradley Rich
President - Dc
$271.1K
Hrs/Wk
1
Compensation
$0
Related Orgs
$260.7K
Other
$10.4K
Jason Bourque
Clerk
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Marc Firenze
Former Vice Chair
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Alison Zetterquist
Chair
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Tim Young
Treasurer
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Kimberlee Schumacher
Interim-president & CEO Beginning Jun25
$0
Hrs/Wk
40
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Jeffrey Ganz | Chief Operating Officer - | 40 | $152.7K | $0 | $6,129 | $158.8K |
| Jacquelyn Breault | Director Of Operations - D | 1 | $0 | $138K | $16.1K | $154.1K |
| Chanda Linn | VP Of Programs & Services - Efne | 40 | $100.2K | $0 | $9,212 | $109.4K |
| David Searles | VP For Development & Communications - Efne | 40 |
Jeffrey Ganz
Chief Operating Officer -
$158.8K
Hrs/Wk
40
Compensation
$152.7K
Related Orgs
$0
Other
$6,129
Jacquelyn Breault
Director Of Operations - D
$154.1K
Hrs/Wk
1
Compensation
$0
Related Orgs
$138K
Other
$16.1K
Chanda Linn
VP Of Programs & Services - Efne
$109.4K
Hrs/Wk
40
Compensation
$100.2K
Related Orgs
$0
Other
$9,212
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Aimee Stevens | Former Director | 0.4 | $0 | $0 | $0 | $0 |
| Andrew Cole Md | Director | 1.5 | $0 | $0 | $0 | $0 |
| Brett Downing | Director | 0.4 | $0 | $0 | $0 | $0 |
| Dara Freedman-Weiss | Former Director | 0.4 | $0 | $0 | $0 | $0 |
| Darlene Wilson | Director | 0.4 | $0 | $0 | $0 | $0 |
| Don Holmes | Director |
Aimee Stevens
Former Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Andrew Cole Md
Director
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
Brett Downing
Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
| $1.9M |
| $4.1M |
| $9.1M |
| $8.7M |
| 2020 | $5.4M | $1.5M | $4.9M | $6.3M | $5.5M |
| 2019 | $6.1M | $1M | $5.8M | $5.6M | $4.8M |
| 2018 | $6.9M | $1.1M | $6.3M | $4.7M | $4.5M |
| 2017 | $7.4M | $2.3M | $6.5M | $4.4M | $4M |
| 2016 | $6M | $1.5M | $5.3M | $3.4M | $3M |
| 2015 | $4.3M | $1.2M | $3.7M | $2.4M | $2.3M |
| 2014 | $3.8M | $1.3M | $3.4M | $1.8M | $1.7M |
| 2012 | $3.7M | $916K | $3.2M | $1.1M | $918.9K |
| 2011 | $786.6K | $500.8K | $459K | $787.7K | $627.9K |
| 2022 | 990 | Data |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990-EZ | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 2000 | 990 | — |
| $103.8K |
| $0 |
| $3,704 |
| $107.5K |
David Searles
VP For Development & Communications - Efne
$107.5K
Hrs/Wk
40
Compensation
$103.8K
Related Orgs
$0
Other
$3,704
| 0.4 |
| $0 |
| $0 |
| $0 |
| $0 |
| Ika Noviawaty | Director | 0.4 | $0 | $0 | $0 | $0 |
| Jennifer Cardillo | Director | 0.4 | $0 | $0 | $0 | $0 |
| Joe Siravo | Director | 1.5 | $0 | $0 | $0 | $0 |
| John Gaitanis Md | Former Director | 0.4 | $0 | $0 | $0 | $0 |
| Philip Haydon Phd | Director | 0.4 | $0 | $0 | $0 | $0 |
| Steve Siravo | Director | 1.5 | $0 | $0 | $0 | $0 |
| Tamara Sacharczyk | Director | 0.4 | $0 | $0 | $0 | $0 |
Dara Freedman-Weiss
Former Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Darlene Wilson
Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Don Holmes
Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Ika Noviawaty
Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Jennifer Cardillo
Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Joe Siravo
Director
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
John Gaitanis Md
Former Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Philip Haydon Phd
Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0
Steve Siravo
Director
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
Tamara Sacharczyk
Director
$0
Hrs/Wk
0.4
Compensation
$0
Related Orgs
$0
Other
$0