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To raise awareness and accelerate research for the most common genetic cause of combined deafness and blindness, while providing information and support to individuals with Usher syndrome.
Source: IRS Form 990 (Tax Year 2023)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2023
Total Revenue
▼$250.2K
Program Spending
80%
of total expenses go to program services
Total Contributions
$221.2K
Total Expenses
▼$284.9K
Total Assets
$240.3K
Total Liabilities
▼$1,587
Net Assets
$238.8K
Officer Compensation
→$72.5K
Other Salaries
$110.6K
Investment Income
$2
Fundraising
▼N/A
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2023 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
990-N (e-Postcard) Filing History
This organization files simplified Form 990-N (annual gross receipts ≤ $50,000).
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2023IRS e-File | $250.2K | $221.2K | $284.9K | $240.3K | $238.8K |
| 2022 | $502.9K | $393.7K | $415.8K | $287K | $283.2K |
| 2021 | $189.4K | — | $191.9K | $197.3K | — |
| 2020 | $236.8K | $192.7K | $172.7K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2023)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2023)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Krista Vasi | Executive Director | 40 | $72.5K | $0 | $0 | $72.5K |
| Lanya Mckittrick Phd | President | 2 | $0 | $0 | $0 | $0 |
| Tara Bowman | Secretary | 1 | $0 | $0 | $0 | $0 |
| Steve Mason | Treasurer | 1 | $0 | $0 | $0 | $0 |
Krista Vasi
Executive Director
$72.5K
Hrs/Wk
40
Compensation
$72.5K
Related Orgs
$0
Other
$0
Lanya Mckittrick Phd
President
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Tara Bowman
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Steve Mason
Treasurer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Danay Trest | Director | 1 | $0 | $0 | $0 | $0 |
| David Alexander | Director | 1 | $0 | $0 | $0 | $0 |
| Eric Wagner Phd | Director | 1 | $0 | $0 | $0 | $0 |
| Jennifer J Lentz Phd | Director | 1 | $0 | $0 | $0 | $0 |
| Kathy Anamisis | Director | 1 | $0 | $0 | $0 | $0 |
| Margaret Kenna Md Mph | Director |
Danay Trest
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
David Alexander
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Eric Wagner Phd
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $199.2K |
| $198.6K |
| 2019 | $280.1K | $221.2K | $269.8K | $135.7K | $134.6K |
| 2018 | $199.3K | $199.3K | $182.9K | $125.3K | $124.4K |
| 2017 | $234.9K | $198K | $290.3K | $120.1K | $108K |
| 2016 | $278.7K | $256K | $244.6K | $164.9K | $163.4K |
| 2015 | $169.7K | $169.7K | $126.7K | $130.7K | $129.3K |
| 2014 | $103.9K | $98.8K | $132.9K | $87.4K | $86.3K |
| 2013 | $15.2K | $11.9K | $94.4K | $118K | $115.3K |
| 2012 | $184.2K | $180.4K | $24.8K | $194.5K | $194.5K |
| 2021 | 990-EZ | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990-EZ | — |
| 2010 | 990-EZ | — |
| 1 |
| $0 |
| $0 |
| $0 |
| $0 |
| Monte Westerfield Phd | Director | 1 | $0 | $0 | $0 | $0 |
| Nancy Corderman | Director | 2 | $0 | $0 | $0 | $0 |
| Steven Mccoy | Director | 1 | $0 | $0 | $0 | $0 |
Jennifer J Lentz Phd
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Kathy Anamisis
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Margaret Kenna Md Mph
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Monte Westerfield Phd
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Nancy Corderman
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Steven Mccoy
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0