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TO IMPROVE HEALTH AND LONGEVITY AND LOWER COSTS OF CARE; BY PROVIDING EDUCATION, SUPPORT, AND SERVICES TO DELIVER COMPREHENSIVE CARE FOR PATIENTS AND THEIR FAMILIES WITH RARE, CHRONIC INHERITED BLOOD DISORDERS.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2023
Total Revenue
▼$23.3M
Program Spending
85%
of total expenses go to program services
Total Contributions
$7.4M
Total Expenses
▼$16.9M
Total Assets
$71.3M
Total Liabilities
▼$21M
Net Assets
$50.3M
Officer Compensation
→$1.3M
Other Salaries
$4.7M
Investment Income
$147.8K
Fundraising
▼N/A
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$17.5M
Awards Found
5
| Awarding Agency | Description | Amount | Fiscal Year | Period | Link |
|---|---|---|---|---|---|
| Department of Health and Human Services | SICKLE CELL TREATMENT DEMONSTRATION PROGRAM | $5.9M | FY2014 | Sep 2014 – Aug 2026 | Open → |
| Department of Health and Human Services | HEMOPHILIA TREATMENT CENTERS (SPRANS) | $4M | FY2012 | Jun 2012 – May 2027 | Open → |
| Department of Health and Human Services | HEMOPHILIA TREATMENT CENTERS (SPRANS) | $3.5M | FY2012 | Jun 2012 – May 2022 | Open → |
| Department of Health and Human Services | SICKLE CELL TREATMENT DEMONSTRATION PROGRAM | $3.2M | FY2014 | Sep 2014 – Aug 2021 | Open → |
| Department of Health and Human Services | REGION IX COMPREHENSIVE HEMOPHILIA CARE PROGRAM | $852.6K | FY2011 | Apr 2011 – May 2012 | Open → |
Department of Health and Human Services
$5.9M
SICKLE CELL TREATMENT DEMONSTRATION PROGRAM
Department of Health and Human Services
$4M
HEMOPHILIA TREATMENT CENTERS (SPRANS)
Department of Health and Human Services
$3.5M
HEMOPHILIA TREATMENT CENTERS (SPRANS)
Department of Health and Human Services
$3.2M
SICKLE CELL TREATMENT DEMONSTRATION PROGRAM
Department of Health and Human Services
$852.6K
REGION IX COMPREHENSIVE HEMOPHILIA CARE PROGRAM
Source: Federal Audit Clearinghouse (fac.gov)
Total Audits
10
Clean Audits
7
Material Weakness
Yes
Noncompliance Issues
No
| Year | Status | Financial Report | Federal Expenditure | Low Risk | Accepted |
|---|---|---|---|---|---|
| 2025 | Minor Findings | Unmodified (Clean) | $1.9M | Yes | 2026-04-07 |
| 2024 | Clean | Unmodified (Clean) | $2M | Yes | 2025-04-10 |
| 2023 | Minor Findings | Unmodified (Clean) | $1.9M | No | 2024-06-21 |
| 2022 | Clean | Unmodified (Clean) | $1.7M | No | 2023-03-20 |
| 2021 | Material Weakness | Unmodified (Clean) | $1.6M | Yes | 2022-04-01 |
| 2020 | Clean | Unmodified (Clean) | $1.2M | Yes | 2021-08-08 |
| 2019 | Clean | Unmodified (Clean) | $1.2M | Yes | 2020-07-01 |
| 2018 | Clean | Unmodified (Clean) | $1.3M | Yes | 2019-06-03 |
| 2017 | Clean | Unmodified (Clean) | $1.9M | Yes | 2018-03-29 |
| 2016 | Clean | Unmodified (Clean) | $1.5M | Yes | 2017-03-24 |
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.9M
Financial Report
Unmodified (Clean)
Federal Expenditure
$2M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.9M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.7M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.6M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.2M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.2M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.3M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.9M
Financial Report
Unmodified (Clean)
Federal Expenditure
$1.5M
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2023IRS e-File | $23.3M | $7.4M | $16.9M | $71.3M | $50.3M |
| 2022 | $12.1M | $3.4M | $15.5M | $46.4M | $40.8M |
| 2021 | $11.5M | $2.6M | $14.6M | $53.3M | $45.7M |
| 2020 | $68.6M | $1.8M | $71.2M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2023)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Barry Staton | Chief Executive Officer & Treasurer | 40 | $400.1K | $0 | $34.2K | $434.3K |
| Michael Warden | Chief Financial Officer | 40 | $255K | $0 | $29.5K | $284.6K |
| Diane J Nugent Md | President/chairperson | 5 | $0 | $0 | $0 | $0 |
| Amit Soni Md | Vice President | 5 | $0 | $0 | $0 | $0 |
| Katie Birschbach | Secretary | 1 | $0 | $0 | $0 | $0 |
Barry Staton
Chief Executive Officer & Treasurer
$434.3K
Hrs/Wk
40
Compensation
$400.1K
Related Orgs
$0
Other
$34.2K
Michael Warden
Chief Financial Officer
$284.6K
Hrs/Wk
40
Compensation
$255K
Related Orgs
$0
Other
$29.5K
Diane J Nugent Md
President/chairperson
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Amit Soni Md
Vice President
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Katie Birschbach
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Esteban Gomez | Physician | 32 | $293.3K | $0 | $15K | $308.3K |
| Vanessa Salinas Luna | Physician | 40 | $218.3K | $0 | $16.8K | $235.1K |
| Nina Hwang | Physician | 32 | $204.3K | $0 | $15.5K | $219.7K |
| Robin Tappey | Human Resources Director | 40 | $210.9K | $0 | $6,593 | $217.5K |
| Matthew Cianciulli | Director Of Clinic | 40 | $200K | $0 | $15.1K | $215.1K |
| Samantha Chan |
Esteban Gomez
Physician
$308.3K
Hrs/Wk
32
Compensation
$293.3K
Related Orgs
$0
Other
$15K
Vanessa Salinas Luna
Physician
$235.1K
Hrs/Wk
40
Compensation
$218.3K
Related Orgs
$0
Other
$16.8K
Nina Hwang
Physician
$219.7K
Hrs/Wk
32
Compensation
$204.3K
Related Orgs
$0
Other
$15.5K
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Bertil Glader Md Phd | Director | 1 | $0 | $0 | $0 | $0 |
| Mary Brown | Director | 0.5 | $0 | $0 | $0 | $0 |
| Randall Curtis | Director | 1 | $0 | $0 | $0 | $0 |
Bertil Glader Md Phd
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Mary Brown
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Randall Curtis
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $56.3M |
| $48.8M |
| 2019 | $72.1M | $1.2M | $52M | $56.7M | $51.4M |
| 2018 | $61.3M | $1.3M | $40.9M | $35.6M | $31.2M |
| 2017 | $42.9M | $1.9M | $39.5M | $14M | $10.8M |
| 2016 | $35M | $1.6M | $32.8M | $10.4M | $7.4M |
| 2015 | $29.6M | $1.8M | $27.6M | $7.7M | $5.1M |
| 2014 | $25.8M | $979.4K | $24.4M | $6.3M | $3.2M |
| 2013 | $21.5M | $925K | $21.7M | $4.2M | $1.8M |
| 2012 | $16M | $1.2M | $16.6M | $5.1M | $2M |
| 2011 | $12.2M | $1.8M | $9.6M | $5.6M | $2.6M |
| 2021 | 990 | Data |
| 2020 | 990 | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| Pharmacy Manager |
| 40 |
| $199.4K |
| $0 |
| $15.2K |
| $214.6K |
| Shalini Vora | Grants Director | 40 | $155.5K | $0 | $11.1K | $166.6K |
| Jeralyn Tucker | Clinic Manager | 40 | $151.4K | $0 | $14.1K | $165.5K |
Robin Tappey
Human Resources Director
$217.5K
Hrs/Wk
40
Compensation
$210.9K
Related Orgs
$0
Other
$6,593
Matthew Cianciulli
Director Of Clinic
$215.1K
Hrs/Wk
40
Compensation
$200K
Related Orgs
$0
Other
$15.1K
Samantha Chan
Pharmacy Manager
$214.6K
Hrs/Wk
40
Compensation
$199.4K
Related Orgs
$0
Other
$15.2K
Shalini Vora
Grants Director
$166.6K
Hrs/Wk
40
Compensation
$155.5K
Related Orgs
$0
Other
$11.1K
Jeralyn Tucker
Clinic Manager
$165.5K
Hrs/Wk
40
Compensation
$151.4K
Related Orgs
$0
Other
$14.1K