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TO THOUGHTFULLY SUPPORT, COMPREHENSIVELY EDUCATE, AND AGGRESSIVELY SEEK THE BEST TREATMENTS AND A CURE FOR THOSE AFFECTED BY GORLIN SYNDROME.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$489.5K
Program Spending
65%
of total expenses go to program services
Total Contributions
$481K
Total Expenses
▼$430.4K
Total Assets
$670.2K
Total Liabilities
▼$275.5K
Net Assets
$394.7K
Officer Compensation
→$133.3K
Other Salaries
$174.9K
Investment Income
$10.5K
Fundraising
▼$9,395
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $489.5K | $481K | $430.4K | $670.2K | $394.7K |
| 2023IRS e-File | $307.1K | $293.7K | $359.1K | $337.2K | $335.6K |
| 2022IRS e-File | $503.4K | $501.8K | $302.3K | $391K | $387.6K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Julia Breneiser | Executive Director | 32 | $84.5K | $0 | $7,612 | $92.1K |
| Meredith Weiss | Executive Director | 32 | $41.1K | $0 | $0 | $41.1K |
| Kevin Gullatt | President Starting In March | 3 | $0 | $0 | $0 | $0 |
| Taylor Hodge | Vice President | 2.5 | $0 | $0 | $0 | $0 |
| Beth Spiegel | Treasurer | 1.5 | $0 | $0 | $0 | $0 |
| Roni Rubenstein | Secretary | 2 | $0 | $0 | $0 | $0 |
Julia Breneiser
Executive Director
$92.1K
Hrs/Wk
32
Compensation
$84.5K
Related Orgs
$0
Other
$7,612
Meredith Weiss
Executive Director
$41.1K
Hrs/Wk
32
Compensation
$41.1K
Related Orgs
$0
Other
$0
Kevin Gullatt
President Starting In March
$0
Hrs/Wk
3
Compensation
$0
Related Orgs
$0
Other
$0
Taylor Hodge
Vice President
$0
Hrs/Wk
2.5
Compensation
$0
Related Orgs
$0
Other
$0
Beth Spiegel
Treasurer
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
Roni Rubenstein
Secretary
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Alix Alderman | Director Joined Board In Sep. | 1 | $0 | $0 | $0 | $0 |
| Dr Elena Hawryluk | Director | 2 | $0 | $0 | $0 | $0 |
| Dr Jim Swift | Director | 0.5 | $0 | $0 | $0 | $0 |
| Jenni Werkmeister | Director Rolled Off Board In June | 1 | $0 | $0 | $0 | $0 |
| Michael Rainen | Director | 1.5 | $0 | $0 | $0 | $0 |
| Samuel Breneiser | Director |
Alix Alderman
Director Joined Board In Sep.
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Dr Elena Hawryluk
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Dr Jim Swift
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
| 2021 |
| $361.1K |
| — |
| $363.5K |
| $216.7K |
| — |
| 2020 | $390.4K | $390.4K | $255.4K | $201.7K | $188.9K |
| 2019 | $262.7K | $253.7K | $295.8K | $32.3K | $24.2K |
| 2018 | $204.7K | $220.9K | $194.5K | $57.3K | $57.3K |
| 2017 | $194K | — | $297.8K | $77.3K | — |
| 2016 | $220.1K | $220.1K | $197.1K | $181.9K | $120.1K |
| 2015 | $248.2K | $248.1K | $173K | $101.3K | $97.1K |
| 2014 | $168K | $168K | $191K | $33.1K | $22K |
| 2013 | $259.9K | $259.6K | $205K | $83.3K | $44.9K |
| 2012 | $170.9K | — | $265.4K | $41.8K | — |
| 2011 | $235.5K | $199.2K | $276K | $123.3K | $84.5K |
| 2021 | 990-PF | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990-EZ | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990-EZ | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990-EZ | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990-EZ | — |
| 2003 | 990-EZ | — |
| 2002 | 990-EZ | — |
| 2001 | 990-EZ | — |
| 0.5 |
| $0 |
| $0 |
| $0 |
| $0 |
| Stacy Bissell | Director | 2 | $0 | $0 | $0 | $0 |
Jenni Werkmeister
Director Rolled Off Board In June
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Michael Rainen
Director
$0
Hrs/Wk
1.5
Compensation
$0
Related Orgs
$0
Other
$0
Samuel Breneiser
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Stacy Bissell
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0