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TO PROMOTE, FUND, AND SUPPORT RESEARCH INTO CAUSES, TREATMENTS AND CURE FOR ET, PV AND MF.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$3.6M
Program Spending
82%
of total expenses go to program services
Total Contributions
$3.4M
Total Expenses
▼$3.8M
Total Assets
$8M
Total Liabilities
▼$1.3M
Net Assets
$6.8M
Officer Compensation
→$270.1K
Other Salaries
$860K
Investment Income
$222.3K
Fundraising
▼N/A
Tax Year 2024 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $299.6K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
JOHNS HOPKINS UNIVERSITY52-0595110 | BALTIMORE, MD | $100K | Non-Cash | MPN RESEARCH |
UNIVERSITY OF NORTH CAROLINA56-6001393 | CHAPEL HILL, NC | $100K | Non-Cash | MPN RESEARCH |
BRIGHAM AND WOMEN'S HOSPITAL HEMATOLOGY | BOSTON, MA | $99.6K | Non-Cash | MPN RESEARCH |
| Total | $299.6K | |||
BALTIMORE, MD
$100K
CHAPEL HILL, NC
$100K
BRIGHAM AND WOMEN'S HOSPITAL HEMATOLOGY
BOSTON, MA
$99.6K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $3.6M | $3.4M | $3.8M | $8M | $6.8M |
| 2023IRS e-File | $2.5M | $2.3M | $3.3M | $7.9M | $6.4M |
| 2022 | $3.9M | $3.7M | $3.7M | $8.7M | $6.7M |
| 2021 | $2.6M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Kapila Viges | Chief Executive Officer | 40 | $165.8K | $0 | $21.4K | $187.2K |
| Amanda Williams | Dir. Of Ops And Growth | 40 | $104.3K | $0 | $10.9K | $115.2K |
| Barbara Van Husen | President | 30 | $0 | $0 | $0 | $0 |
| David Boule | Treasurer | 5 | $0 | $0 | $0 | $0 |
Kapila Viges
Chief Executive Officer
$187.2K
Hrs/Wk
40
Compensation
$165.8K
Related Orgs
$0
Other
$21.4K
Amanda Williams
Dir. Of Ops And Growth
$115.2K
Hrs/Wk
40
Compensation
$104.3K
Related Orgs
$0
Other
$10.9K
Barbara Van Husen
President
$0
Hrs/Wk
30
Compensation
$0
Related Orgs
$0
Other
$0
David Boule
Treasurer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Andrew Schafer | Director | 2 | $0 | $0 | $0 | $0 |
| Brandon Goetzman | Director | 2 | $0 | $0 | $0 | $0 |
| David Ricci | Director | 2 | $0 | $0 | $0 | $0 |
| Ed Bartholemy | Director | 2 | $0 | $0 | $0 | $0 |
| Jeffrey Shier | Director | 2 | $0 | $0 | $0 | $0 |
| Pamela Murphy | Director |
Andrew Schafer
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Brandon Goetzman
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
David Ricci
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
| $2.4M |
| $2M |
| $7.8M |
| $7.1M |
| 2020 | $6.5M | $6.5M | $2.7M | $7.4M | $6.1M |
| 2019 | $2.9M | $2.8M | $2.6M | $3M | $1.7M |
| 2018 | $2.1M | $2.1M | $2.5M | $2.5M | $1.4M |
| 2017 | $2.3M | $2.3M | $1.9M | $2.8M | $1.8M |
| 2016 | $1.4M | $1.4M | $1.4M | $1.9M | $1.5M |
| 2015 | $1.9M | $1.9M | $1.5M | $2.1M | $1.5M |
| 2014 | $1.7M | $1.7M | $1.6M | $1.9M | $1.1M |
| 2013 | $1.7M | $1.7M | $939.6K | $1.3M | $1M |
| 2012 | $1.2M | $1.2M | $1.7M | $777.7K | $286.9K |
| 2011 | $1.3M | $1.3M | $1.4M | $1M | $810.3K |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data | PDF not yet published by IRS |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 2 |
| $0 |
| $0 |
| $0 |
| $0 |
| Rebecca Shapiro | Director | 2 | $0 | $0 | $0 | $0 |
| Sam Klepper | Director | 2 | $0 | $0 | $0 | $0 |
| Stephanie Cindric | Director | 2 | $0 | $0 | $0 | $0 |
Ed Bartholemy
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Jeffrey Shier
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Pamela Murphy
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Rebecca Shapiro
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Sam Klepper
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Stephanie Cindric
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0