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THE EHLERS-DANLOS SOCIETY IS A GLOBAL ORGNIZATION DEDICATED TO ADVANCING AND ACCELERATING RESEARCH AND EDUCATION IN EHLERS-DANLOS SYNDROMES (EDS) AND HYPERMOBILITIY SPECTRUM DISPORDERS (HSD). WE SUPPORT THE DEVELOPMENT OF EFFECTIVE AND EQUITABLE EDS AND HSD THERAPIES AND WORK COLLAVORATIVELY TO IMPOVE THE LIVES OF INDIVIDUALS AFFECTED BY EDS AND HSD.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$5M
Program Spending
69%
of total expenses go to program services
Total Contributions
$4.4M
Total Expenses
▼$4.5M
Total Assets
$8.2M
Total Liabilities
▼$529.1K
Net Assets
$7.7M
Officer Compensation
→$301.5K
Other Salaries
$1.3M
Investment Income
$566
Fundraising
▼N/A
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $5M | $4.4M | $4.5M | $8.2M | $7.7M |
| 2023 | $9.8M | $9.4M | $5.2M | $8.7M | $7.2M |
| 2022 | $4.5M | $3.9M | $4.1M | $3.2M | $2.6M |
| 2021 | $4.2M | $4.1M | $3.4M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | PDF not yet published by IRSView Filing → |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Lara Bloom | CEO | 50 | $0 | $215.1K | $0 | $215.1K |
| Eric Alley | CFO | 40 | $86.3K | $0 | $0 | $86.3K |
| Robert Rubin | Treasurer | 5 | $0 | $0 | $0 | $0 |
| John Zonarich | Secretary | 5 | $0 | $0 | $0 | $0 |
| Susan Hawkins | President | 5 | $0 | $0 | $0 | $0 |
Lara Bloom
CEO
$215.1K
Hrs/Wk
50
Compensation
$0
Related Orgs
$215.1K
Other
$0
Eric Alley
CFO
$86.3K
Hrs/Wk
40
Compensation
$86.3K
Related Orgs
$0
Other
$0
Robert Rubin
Treasurer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
John Zonarich
Secretary
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Susan Hawkins
President
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Aisling Green | Director | 1 | $0 | $0 | $0 | $0 |
| Akilah Cadet | Director | 1 | $0 | $0 | $0 | $0 |
| Amy Rochlin | Director | 1 | $0 | $0 | $0 | $0 |
| Anoushe Husain | Director | 1 | $0 | $0 | $0 | $0 |
| Clair Francomano | Director | 1 | $0 | $0 | $0 | $0 |
| Frances Fitzgerald | Director |
Aisling Green
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Akilah Cadet
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Amy Rochlin
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $2.8M |
| $2.2M |
| 2020 | $2.2M | $2.2M | $1.7M | $2.2M | $1.3M |
| 2019 | $3.2M | $2.9M | $2.7M | $1.4M | $801.1K |
| 2018 | $1.6M | $1.3M | $1.7M | $645.8K | $280.3K |
| 2017 | $952.6K | $751.9K | $609.1K | $491.7K | $381.4K |
| 2016 | $717.9K | $543.8K | $763K | $246.9K | $38K |
| 2015 | $502.2K | $375.9K | $606.7K | $770K | $83.6K |
| 2014 | $964.1K | $818.4K | $380.8K | $1M | $188.5K |
| 2013 | $798.1K | $641.5K | $1.4M | $700.9K | -$394.8K |
| 2012 | $331.1K | $164.8K | $258.8K | $168.5K | $168.3K |
| 2011 | $289.5K | $119.5K | $221.2K | $97.1K | $95.9K |
| 2010 | $284.8K | $126.7K | $289.1K | $41.1K | $27.6K |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | Data |
| 2009 | 990-EZ | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 1 |
| $0 |
| $0 |
| $0 |
| $0 |
| Melanie Macleod | Director | 1 | $0 | $0 | $0 | $0 |
| Michelle Jalali | Director | 1 | $0 | $0 | $0 | $0 |
| Susan Haskel | Director | 1 | $0 | $0 | $0 | $0 |
| Ward Fitzgerald | Director | 1 | $0 | $0 | $0 | $0 |
| Woodrow Gandy | Director | 1 | $0 | $0 | $0 | $0 |
Anoushe Husain
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Clair Francomano
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Frances Fitzgerald
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Melanie Macleod
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Michelle Jalali
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Susan Haskel
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Ward Fitzgerald
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Woodrow Gandy
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0