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PROMOTE AND FUND RESEARCH INTO DEVELOPING BETTER DIAGNOSTIC PROCESSES, THERAPIES (CONT'D IN SCH O)AND CURES FOR FRONTOTEMPORAL DEGENERATION (FTD); PROVIDE INFORMATION, EDUCATION, SUPPORT AND ADVOCACY TO PERSONS DIAGNOSED WITH FTD, THEIR FAMILIES AND CAREGIVERS; EDUCATE PHYSICIANS AND OTHER HEALTH PROFESSIONALS ABOUT FTD AND HOW TO IMPROVE PATIENT CARE; BRING ABOUT GREATER PUBLIC AWARENESS OF THE NATURE AND PREVALENCE OF FRONTOTEMPORAL DEGENERATION AND THE NEEDS OF THOSE WHO ARE COPING WITH IT; ADVOCATE WITH PUBLIC OFFICIALS TO PROMOTE PUBLIC AND PRIVATE PROGRAMS THAT PROVIDE APPROPRIATE, AFFORDABLE AND HIGH-QUALITY, LONG-TERM HEALTH CARE AND SOCIAL SERVICES.
Source: IRS Form 990 (Tax Year 2025)
Source: IRS Form 990 via ProPublica Nonprofit Explorer
Total Revenue
▼$13.1M
Total Contributions
$12.4M
Total Expenses
▼$11.5M
Total Assets
$54M
Total Liabilities
▼$3.4M
Net Assets
$50.6M
Officer Compensation
→$672.2K
Other Salaries
$3.9M
Investment Income
▼$1.2M
Fundraising
▼$144.7K
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Source: IRS e-Filed Form 990
No officer or director compensation data available for this organization.
This data is sourced from IRS Form 990, Part VII. It may not be available if the organization files Form 990-N (e-Postcard) or has not yet been enriched.
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024 | $13.1M | $12.4M | $11.5M | $54M | $50.6M |
| 2023 | $8.5M | $8.8M | $9.7M | $47.5M | $45.1M |
| 2022 | $12.1M | $12.1M | $8.6M | $44.8M | $42.6M |
| 2021 | $28.5M | $28.1M | $7.6M | $44.8M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2025 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2024 | 990 | DataIRS e-File | |
| 2023 | 990 | DataIRS e-File |
Financial data: IRS Form 990 via ProPublica Nonprofit Explorer (Tax Year 2024)
Organization info: IRS Business Master File · ProPublica Nonprofit Explorer
Tax-deductibility: IRS Publication 78
| $42.9M |
| 2020 | $9.5M | $9.3M | $7.7M | $23.9M | $20.9M |
| 2019 | $9.1M | $8.9M | $7M | $21.2M | $19.1M |
| 2018 | $14.8M | $14.6M | $4.6M | $17.5M | $16.8M |
| 2017 | $4.3M | $4.2M | $5.7M | $8.3M | $7M |
| 2016 | $8.2M | $8.1M | $2.7M | $8.8M | $8.3M |
| 2015 | $2.2M | $2.2M | $2M | $3M | $2.7M |
| 2014 | $2.7M | $2.7M | $1.4M | $2.5M | $2.5M |
| 2013 | $1.2M | $1.2M | $1.2M | $1.2M | $1.2M |
| 2012 | $460K | $454.2K | $478.8K | $1.2M | $1.1M |
| 2011 | $1M | $1M | $959.9K | $1.2M | $1.1M |
| 2022 | 990 | Data |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data | PDF not yet published by IRS |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |