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RAISING AWARENESS OF AND SUPPORT FOR THE SHWACHMAN-DAIMOND SYNDROME DISEASE. THIS IS DONE THROUGH EDUCATIONAL CONFERENCES AND THE PUBLICAITON OF PERIODALCS SUCH AS NEWSLETTERS AND BROUCHURES. RESEARCH GRANTS ARE ALSO AWARDED FOR THE STUDY OF THE SYNDROME.
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$83.7K
Program Spending
85%
of total expenses go to program services
Total Contributions
$78.9K
Total Expenses
▼$138.6K
Total Assets
$206.8K
Total Liabilities
▼-$231
Net Assets
$207.1K
Officer Compensation
→$0
Other Salaries
$15.3K
Investment Income
$4,798
Fundraising
▼N/A
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $83.7K | $78.9K | $138.6K | $206.8K | $207.1K |
| 2023 | $65.2K | $65.2K | $46.8K | $268.8K | $262K |
| 2022 | $65.7K | $65.6K | $145.7K | $244.9K | $243.6K |
| 2021 | $192.1K | $192.1K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Joan Mowery | President | 5 | $0 | $0 | $0 | $0 |
| Christian Del Re | Vice President | 5 | $0 | $0 | $0 | $0 |
| Mary Balint | Secretary | 5 | $0 | $0 | $0 | $0 |
| John Wall | Treasurer | 5 | $0 | $0 | $0 | $0 |
Joan Mowery
President
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Christian Del Re
Vice President
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Mary Balint
Secretary
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
John Wall
Treasurer
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Bryan Sample | Advisor | 5 | $0 | $0 | $0 | $0 |
| Deana Valiante | Outside Dir | 5 | $0 | $0 | $0 | $0 |
| Pamela Miller | Executive Dir. | 5 | $0 | $0 | $0 | $0 |
| Shari St Hilaire | Outside Dir | 5 | $0 | $0 | $0 | $0 |
| Tom Dahlman | Outside Dir | 5 | $0 | $0 | $0 | $0 |
Bryan Sample
Advisor
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Deana Valiante
Outside Dir
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Pamela Miller
Executive Dir.
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
| $35.6K |
| $358.3K |
| $358.3K |
| 2020 | $78.8K | — | $97.8K | $201.8K | — |
| 2019 | $65.7K | $65.7K | $108.7K | $224.1K | $220.7K |
| 2018 | $154.4K | $154.4K | $79.8K | $263.7K | $263.7K |
| 2017 | $79.8K | $79.8K | $58.8K | $189.1K | $189.1K |
| 2016 | $121.6K | $121.6K | $102.2K | $168.1K | $168.1K |
| 2015 | $124.2K | $124.2K | $145K | $148.8K | $148.8K |
| 2014 | $64.5K | — | $81.5K | $169.6K | — |
| 2013 | $76.7K | — | $39.8K | $186.6K | — |
| 2012 | $101.6K | — | $33.5K | $150.2K | — |
| 2011 | $51.5K | — | $81.6K | $85.7K | — |
| 2021 | 990 | Data |
| 2020 | 990-EZ | Data | PDF not yet published by IRS |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990-EZ | Data |
| 2013 | 990-EZ | Data |
| 2012 | 990-EZ | Data |
| 2011 | 990-EZ | Data |
| 2010 | 990-EZ | — |
| 2009 | 990-EZ | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990-EZ | — |
| 2001 | 990-EZ | — |
Shari St Hilaire
Outside Dir
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0
Tom Dahlman
Outside Dir
$0
Hrs/Wk
5
Compensation
$0
Related Orgs
$0
Other
$0