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Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$339.9K
Program Spending
83%
of total expenses go to program services
Total Contributions
$298.4K
Total Expenses
▼$497.3K
Total Assets
$98.3K
Total Liabilities
▼$0
Net Assets
$98.3K
Officer Compensation
→$96K
Other Salaries
N/A
Investment Income
$31
Fundraising
▼N/A
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
No federal single audit records found for this organization.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $339.9K | $298.4K | $497.3K | $98.3K | $98.3K |
| 2023 | $508.6K | $488.8K | $393K | $255.7K | $255.7K |
| 2022 | $237K | $235.4K | $430.4K | $128.2K | $128.2K |
| 2021 | $287.4K | $282.7K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
| Tax Year | Form Type | Source | Documents |
|---|---|---|---|
| 2024 | 990 | IRS e-File | PDF not yet published by IRSView Filing → |
| 2023 | 990 | DataIRS e-File | |
| 2022 | 990 | DataIRS e-File |
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Thomas P Sutula Md | Past President | 1 | $0 | $0 | $0 | $0 |
| Andrew J Cole Md | President | 1 | $0 | $0 | $0 | $0 |
| Ludy Shih Md | Incoming President | 1 | $0 | $0 | $0 | $0 |
Thomas P Sutula Md
Past President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Andrew J Cole Md
President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Ludy Shih Md
Incoming President
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Jessica Smith | Executive Director | 32 | $96K | $0 | $0 | $96K |
| M Maral Mouradianmd | Journal Editor In Chief | 10 | $36K | $0 | $0 | $36K |
Jessica Smith
Executive Director
$96K
Hrs/Wk
32
Compensation
$96K
Related Orgs
$0
Other
$0
M Maral Mouradianmd
Journal Editor In Chief
$36K
Hrs/Wk
10
Compensation
$36K
Related Orgs
$0
Other
$0
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Aditya Joshi Md | University Of Penn | 1 | $0 | $0 | $0 | $0 |
| Amir Tamiz Phd | Ninds/nih Liaison | 1 | $0 | $0 | $0 | $0 |
| Amy Chappel Md | Consultant | 1 | $0 | $0 | $0 | $0 |
| C Anthony Altar Phd | Splice Therapeutics | 1 | $0 | $0 | $0 | $0 |
| Debra Ehrlich Md | Nih/ninds | 1 | $0 | $0 | $0 | $0 |
| Dietrich Haubenberger Md | Neurocrine |
Aditya Joshi Md
University Of Penn
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Amir Tamiz Phd
Ninds/nih Liaison
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Amy Chappel Md
Consultant
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $254.1K |
| $321.6K |
| $321.6K |
| 2020 | $314K | $286.3K | $375.7K | $288.3K | $288.3K |
| 2019 | $320.8K | $275K | $343.4K | $350K | $350K |
| 2018 | $479K | $416.8K | $397.4K | $167.6K | $167.6K |
| 2017 | $420.6K | $335.8K | $403.5K | $105.6K | $86K |
| 2016 | $325.6K | $281K | $380.6K | $116K | $68.9K |
| 2015 | $264.7K | $210.8K | $327.1K | $183.2K | $123.9K |
| 2014 | $327.9K | $274.9K | $365.4K | $195.6K | $186.2K |
| 2013 | $400.9K | $338.7K | $374.5K | $269.5K | $223.8K |
| 2012 | $327.7K | $273.3K | $396.3K | $222.8K | $197.4K |
| 2011 | $332.5K | $280.5K | $375.6K | $306K | $266K |
| 2021 | 990 | DataIRS e-File |
| 2020 | 990 | DataIRS e-File |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990-EZ | — |
| 2008 | 990-EZ | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| 2001 | 990 | — |
| 1 |
| $0 |
| $0 |
| $0 |
| $0 |
| Enrique Carrazana Md | Neurelis | 1 | $0 | $0 | $0 | $0 |
| Gail Farfel Phd | Consultant | 1 | $0 | $0 | $0 | $0 |
| Kazuo Fujihara Md | Fukushima University | 1 | $0 | $0 | $0 | $0 |
| Kenneth Sommerville Md | Sommerville Consulting | 1 | $0 | $0 | $0 | $0 |
| Sharon Tamir | Consultant | 1 | $0 | $0 | $0 | $0 |
C Anthony Altar Phd
Splice Therapeutics
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Debra Ehrlich Md
Nih/ninds
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Dietrich Haubenberger Md
Neurocrine
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Enrique Carrazana Md
Neurelis
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Gail Farfel Phd
Consultant
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Kazuo Fujihara Md
Fukushima University
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Kenneth Sommerville Md
Sommerville Consulting
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Sharon Tamir
Consultant
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0