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THE GOALS OF THE ORGANIZATION'S RESEARCH ARE TO IDENTIFY WHICH GENES CAUSE DYSFUNCTION, UNDERSTAND THE CAUSE OF CHROMOSOME 3Q29 DISORDERS, AND DISCOVER TREATMENT, PREVENTION, AND WAYS TO IMPROVE THE FUNCTIONALITY OF THESE GENES. IN ADDITION TO SUPPORTING SPECIFIC RESEARCH PROJECTS, THE ORGANIZATION WILL WORK TO DEVELOP A NETWORK OF LEADING SCIENTISTS AND INDUSTRY PARTNERS TO INCREASE TRANSPARENCY AND FACILITATE SHARED RESOURCES CREATING ECONOMIES OF SCALE ON ALL CONDITIONS OF CHROMOSOME 3Q29 DISORDERS. IN ADDITION TO SUPPORTING RESEARCH ACTIVITIES, THE ORGANIZATION ALSO SEEKS TO CREATE A COMMUNITY AMONG CHROMOSOME 3Q29 DISORDER PATIENT FAMILIES. THE ORGANIZATION BELIEVES THAT EACH IS A RESOURCE FOR THE OTHERS AND ONLY BY SHARING INFORMATION CAN THE GREATER GOAL OF TREATMENT BE ACHIEVED. INCREASING THE NUMBER OF PARTICIPANTS AND DETAILS ON MEDICAL HISTORY SHOULD GREATLY INCREASE THE LIKELIHOOD OF TREATMENT FOR ALL THOSE WITH A CHROMOSOME 3Q29 DISORDER. FINALLY, THE ORGANIZATION IS COMMI
Source: IRS Form 990 (Tax Year 2024)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2024
Total Revenue
▼$147.9K
Program Spending
0%
of total expenses go to program services
Total Contributions
$144.5K
Total Expenses
▼$43.4K
Total Assets
$115.3K
Total Liabilities
▼$0
Net Assets
$115.3K
Officer Compensation
→N/A
Other Salaries
N/A
Investment Income
$3,356
Fundraising
▼N/A
Source: USAspending.gov
No federal awards found for this organization.
USAspending.gov tracks federal grants, cooperative agreements, and other financial assistance. Not all nonprofits receive federal funding.
Source: Federal Audit Clearinghouse (fac.gov)
Federal audit data is temporarily unavailable.
Single audits are required for entities expending $750,000+ in federal awards annually.
Tax Year 2024 · Source: IRS e-Filed Form 990
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
990-N (e-Postcard) Filing History
This organization files simplified Form 990-N (annual gross receipts ≤ $50,000).
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2024IRS e-File | $147.9K | $144.5K | $43.4K | $115.3K | $115.3K |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2024)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2024)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Adela Balducci | Director | 1 | $0 | $0 | $0 | $0 |
| Lindsey Bordone | Director | 0.5 | $0 | $0 | $0 | $0 |
| Sandra Forman | President | 3 | $0 | $0 | $0 | $0 |
| Michael Merley | Director | 0.5 | $0 | $0 | $0 | $0 |
| Jessica Moon | Treasurer, S | 7 | $0 | $0 | $0 | $0 |
| Jose Roman | Director | 2 | $0 | $0 | $0 | $0 |
| Margot Sturz | Director | 2 | $0 | $0 | $0 | $0 |
Adela Balducci
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Lindsey Bordone
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Sandra Forman
President
$0
Hrs/Wk
3
Compensation
$0
Related Orgs
$0
Other
$0
Michael Merley
Director
$0
Hrs/Wk
0.5
Compensation
$0
Related Orgs
$0
Other
$0
Jessica Moon
Treasurer, S
$0
Hrs/Wk
7
Compensation
$0
Related Orgs
$0
Other
$0
Jose Roman
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0
Margot Sturz
Director
$0
Hrs/Wk
2
Compensation
$0
Related Orgs
$0
Other
$0