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TO IMPROVE THE LIVES OF PEOPLES AFFECTED BY EPILEPSY THROUGH EDUCATION, ADVOCACY, RESEARCH, AND CONNECTION.
Source: IRS Form 990 (Tax Year 2023)
Source: IRS e-Filed Form 990 (from the IRS e-File system), Tax Year 2022
Total Revenue
▼$17.8M
Program Spending
77%
of total expenses go to program services
Total Contributions
$18.8M
Total Expenses
▼$16M
Total Assets
$21.6M
Total Liabilities
▼$1.7M
Net Assets
$19.9M
Officer Compensation
→$1.4M
Other Salaries
$5.6M
Investment Income
-$954.2K
Fundraising
▼$67.3K
Tax Year 2022 · Source: IRS Form 990, Schedule I (Grants and Other Assistance)
Total grants awarded: $347.5K
| Recipient | Location | Amount | Type | Purpose |
|---|---|---|---|---|
MAYO CLINIC41-6011702 | ROCHESTER, MN | $237.5K | Cash | SEIZURE GAUGE GRANT |
AMERICAN EPILEPSY SOCIETY | CHICAGO, IL | $50K | Cash | SUPPORT A YOUNG RESEARCHER IN THE FIELD OF EPILEPSY |
AMERICAN BRAIN FOUNDATION41-1717098 | MINNEAPOLIS, MN | $50K | Cash | SUPPORT THE CLINICAL RESEARCH TRAINING SCHOLARSHIP |
GORDON RESEARCH CONFERENCE26-0150662 | WEST KINGSTON, RI | $10K | Cash | SUPPORT THE GORDON RESEARCH CONFERENCE |
| Total | $347.5K | |||
ROCHESTER, MN
$237.5K
AMERICAN EPILEPSY SOCIETY
CHICAGO, IL
$50K
MINNEAPOLIS, MN
$50K
WEST KINGSTON, RI
$10K
Source: USAspending.gov · Searched by organization name
Total Federal Funding
$72.2M
Awards Found
10
Department of Health and Human Services
$21M
IMPROVING EPILEPSY EDUCATION, SYSTEMS OF CARE, AND HEALTH OUTCOMES THROUGH NATIONAL AND COMMUNITY PARTNERSHIPS - 2021
Department of Health and Human Services
$17.7M
AN EPILEPSY EDUCATION & AWARENESS COLLABORATIVE: IMPROVING EPILEPSY PROGRAMS, SERVICES, AND OUTCOMES THROUGH PARTNERSHIPS
Department of Health and Human Services
$13.2M
DEVELOPMENT AND IMPLEMENTATION OF PROGRAMS TO ENHANCE EPILEPSY PUBLIC AWARENESS
Department of Health and Human Services
$10.8M
IMPROVING THE LIVES OF PEOPLE LIVING WITH ELIEPSY THUR EDU, AWARENESS, & INFORMAT
Department of Health and Human Services
$3.1M
DEVELOPMENT AND IMPLEMENTATION OF PROGRAMS TO ENHANCE EPILEPSY PUBLIC AWARENESS
Department of Health and Human Services
$2.7M
AWARENESS AND ACCESS TO CARE FOR CHILDREN AND YOUTH WITH EPILEPSY
Department of Health and Human Services
$1.5M
AWARENESS AND ACCESS TO CARE FOR CHILDREN AND YOUTH WITH EPILEPSY
Department of Health and Human Services
$1M
AWARENESS AND ACCESS TO CARE FOR CHILDREN AND YOUTHS WITH EPILEPSY
Department of Health and Human Services
$644.4K
AWARENESS AND ACCESS TO CARE FOR CHILDREN AND YOUTHS WITH EPILEPSY
Department of Health and Human Services
$491.8K
PLANNING FOR EPILEPSY HEALTH DISPARITIES RESEARCH THROUGH COMMUNITY CO-PRODUCTION.” - ALTHOUGH EPILEPSY (ALSO CALLED SEIZURE DISORDERS OR THE EPILEPSIES) CAN AFFECT PEOPLE FROM ALL DEMOGRAPHIC GROUPS, THE IMPACT OF HAVING EPILEPSY IS NOT EQUAL AMONG ALL POPULATION GROUPS. THERE ARE DISPARITIES IN EPILEPSY THAT CREATE WORSE HEALTH OUTCOMES FOR SOME INDIVIDUALS. DIFFERENCES HAVE BEEN DOCUMENTED BY RACE/ETHNICITY GROUP, INCOME GROUP, GEOGRAPHIC LOCATION, AND BY INSURER TYPE. EPILEPSY DISPARITIES RESULT IN WORSE MENTAL HEALTH, MORE FREQUENT EMERGENCY DEPARTMENT VISITS, INCREASED HOSPITALIZATION RATES, AND INCREASED RISK OF EARLY DEATH. THIS PLANNING GRANT WAS DEVELOPED TO STUDY THE DRIVERS OF DISPARITIES IN LOCAL COMMUNITIES AND TO DEVELOP PLANS FOR INTERVENTIONS THAT WILL REDUCE THE DISPROPORTIONATE BURDEN. THIS PLANNING GRANT BUILDS COLLABORATIONS, CAPACITY AND RESEARCH EXPERTISE TO CONDUCT HEALTH DISPARITIES RESEARCH WITHIN THE EPILEPSY LEARNING HEALTHCARE SYSTEM (ELHS). THE ELHS NETWORK IS A NATIONAL QUALITY IMPROVEMENT EPILEPSY CARE NETWORK. ELHS IS POISED TO BECOME A PLATFORM TO CONDUCT A WIDE RANGE OF RESEARCH STUDIES ON EPILEPSY THAT ARE CO-PRODUCED BY PATIENTS AND FAMILIES, HEALTHCARE PROVIDERS AND RESEARCHERS. THE PLANNING TEAM BENEFITS FROM A STRONG AND LONG-STANDING COMMUNITY-ACADEMIC PARTNERSHIP BETWEEN THE EPILEPSY FOUNDATION AND MASS GENERAL HOSPITAL/HARVARD UNIVERSITY. WE WILL DEVELOP METHODS TO SUSTAINABLY ENGAGE LOCAL COMMUNITY PARTNERS AND EPILEPSY PATIENT/FAMILY PARTNERS IN CO-PRODUCING PRIORITIES FOR EPILEPSY HEALTH DISPARITIES RESEARCH, PILOT STRATEGIES TO IDENTIFY AND MONITOR DIFFERENCES IN HEALTH OUTCOMES AND PROMOTE RESEARCH READINESS FOR FUTURE INTERVENTIONS. THE PLANNING TEAM INVOLVES A BROAD RANGE OF PERSPECTIVES, RESEARCH DISCIPLINES, AND CAREER STAGES. THE PLANNING GRANT WILL ALLOW US TO BUILD THE UNIQUE CAPABILITY TO CONDUCT RIGOROUS LONGITUDINAL STUDIES ON EPILEPSY OUTCOMES WITH ELHS CENTER TEAMS AND THEIR LOCAL COMMUNITY PARTNERS, AND TO SPREAD SUCCESSFUL INTERVENTIONS ACROSS THE NETWORK AND BEYOND.
Source: Federal Audit Clearinghouse (fac.gov)
Years audited
10
Clean years
8
Material Weakness
Yes
Noncompliance Issues
Yes
| Year | Status | Financial Report | Federal Expenditurecombined across all audits filed that year | Low Risk | Accepted |
|---|---|---|---|---|---|
| 2025 | Clean | Unmodified (Clean) | $3.4M | No | 2026-01-09 |
| 2024 | Clean | Unmodified (Clean) | $3.2M | No | 2025-03-25 |
| 2023 | Material Weakness | Unmodified (Clean) | $3.9M | No | 2024-03-19 |
| 2022 | Material Weakness | Unmodified (Clean) | $3.8M | Yes | 2023-02-13 |
| 2021 | Clean | Unmodified (Clean) | $3.5M | Yes | 2021-11-21 |
| 2020 | Clean | Unmodified (Clean) | $3.5M | Yes | 2020-11-16 |
| 2019 | Clean | Unmodified (Clean) | $3.6M | Yes | 2019-11-13 |
| 2018 | Clean | Unmodified (Clean) | $3.3M | Yes | 2018-11-18 |
| 2017 | Clean | Unmodified (Clean) | $3.3M | Yes | 2017-11-02 |
| 2016 | Clean | Unmodified (Clean) | $3.1M | Yes | 2017-01-03 |
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.4M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.2M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.9M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.8M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.5M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.5M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.6M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.3M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.3M
Financial Report
Unmodified (Clean)
Federal Expenditure, combined across all audits filed that year
$3.1M
Tax Year 2022 · Source: IRS e-Filed Form 990Schedule J available
Individuals serving as officers, directors, or trustees of the organization.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other |
|---|
Source: IRS Publication 78, Auto-Revocation List & e-Postcard Data
Tax-deductible contributions: Yes
Deductibility code: PC
Sources: IRS e-Filed Form 990 (XML) & ProPublica Nonprofit Explorer
Scroll →
| Year | Revenue | Contributions | Expenses | Assets | Net Assets |
|---|---|---|---|---|---|
| 2023 | $17.8M | $18.8M | $16M | $21.6M | $19.9M |
| 2022IRS e-File | $17.8M | $18.8M | $16M | $21.6M | $19.9M |
| 2021 | $19.4M | $18.9M | $18.9M | $21.6M | $16.9M |
| 2020 | $28.6M | $28.6M | $25.5M |
Sources: ProPublica Nonprofit Explorer & IRS e-File Index
Financial data: IRS e-Filed Form 990 (Tax Year 2022)
Leadership & compensation: IRS e-Filed Form 990, Part VII (Tax Year 2022)
Federal grants: USAspending.gov (live)
Organization info: IRS Business Master File
Tax-deductibility: IRS Publication 78
| Total |
|---|
| Laura Thrall | Chief Executive Officer Until Oct 2022 | 35 | $457.6K | $0 | $30.6K | $488.2K |
| Rahel Rosner | Chief Finance And Operating Officer | 35 | $269.6K | $0 | $37.6K | $307.2K |
| Brandy Fureman | Chief Outcome Officer | 35 | $232.9K | $0 | $47.7K | $280.5K |
| Geoffrey Delizzio | Chief Development Officer | 35 | $235K | $0 | $39.7K | $274.7K |
| Alison Zetterquist | Interim Chief Executive Officer | 35 | $165.8K | $0 | $0 | $165.8K |
| Jeffrey Parent | Chair | 1 | $0 | $0 | $0 | $0 |
| Courtney Watson | Vice Chair | 1 | $0 | $0 | $0 | $0 |
| Mark Theeuwes | Secretary | 1 | $0 | $0 | $0 | $0 |
| Daniel Moore | Treasurer | 1 | $0 | $0 | $0 | $0 |
Laura Thrall
Chief Executive Officer Until Oct 2022
$488.2K
Hrs/Wk
35
Compensation
$457.6K
Related Orgs
$0
Other
$30.6K
Rahel Rosner
Chief Finance And Operating Officer
$307.2K
Hrs/Wk
35
Compensation
$269.6K
Related Orgs
$0
Other
$37.6K
Brandy Fureman
Chief Outcome Officer
$280.5K
Hrs/Wk
35
Compensation
$232.9K
Related Orgs
$0
Other
$47.7K
Geoffrey Delizzio
Chief Development Officer
$274.7K
Hrs/Wk
35
Compensation
$235K
Related Orgs
$0
Other
$39.7K
Alison Zetterquist
Interim Chief Executive Officer
$165.8K
Hrs/Wk
35
Compensation
$165.8K
Related Orgs
$0
Other
$0
Jeffrey Parent
Chair
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Courtney Watson
Vice Chair
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Mark Theeuwes
Secretary
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Daniel Moore
Treasurer
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Highest compensated employees who are not officers or directors.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Laura Weidner | Chief Advocacy Officer | 35 | $185.1K | $0 | $20.5K | $205.6K |
| Nathan Devault | Vp, Marketing And Communications | 35 | $160.6K | $0 | $29.3K | $189.9K |
| Kathleen Farrell | Vp, Public Health & Outcomes | 35 | $140K |
Laura Weidner
Chief Advocacy Officer
$205.6K
Hrs/Wk
35
Compensation
$185.1K
Related Orgs
$0
Other
$20.5K
Nathan Devault
Vp, Marketing And Communications
$189.9K
Hrs/Wk
35
Compensation
$160.6K
Related Orgs
$0
Other
$29.3K
Kathleen Farrell
Vp, Public Health & Outcomes
$175.4K
Hrs/Wk
35
Compensation
$140K
Related Orgs
$0
Other
$35.4K
Members of the governing board. Board members often serve without compensation.
| Name | Title | Hrs/Wk | Compensation | Related Orgs | Other | Total |
|---|---|---|---|---|---|---|
| Abraham Glaser | Director | 1 | $0 | $0 | $0 | $0 |
| Ali Heron | Director | 1 | $0 | $0 | $0 | $0 |
| Angelica Roiz | Director | 1 | $0 | $0 | $0 | $0 |
| Camila Coelho | Director | 1 | $0 | $0 | $0 | $0 |
| Curtis Deprey | Director | 1 | $0 | $0 | $0 | $0 |
| David Hawk | Director | 1 |
Abraham Glaser
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Ali Heron
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Angelica Roiz
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
| $25.8M |
| $19.4M |
| 2019 | $20.5M | $19.7M | $23.5M | $20.2M | $17.1M |
| 2018 | $23.6M | $22.9M | $17.3M | $21.5M | $19.6M |
| 2017 | $16M | $14.2M | $15.2M | $14.9M | $13.3M |
| 2016 | $15M | $14.6M | $14.1M | $15.7M | $11.9M |
| 2015 | $13.1M | $13M | $13.3M | $16.2M | $11.5M |
| 2014 | $14.7M | $17.7M | $14M | $17.4M | $11.5M |
| 2013 | $14.9M | $14.2M | $15.1M | $18M | $10.3M |
| 2012 | $10.1M | $9.6M | $13M | $18.2M | $10.3M |
| 2011 | $13M | $12.5M | $15.1M | $20.9M | $13.7M |
| 2021 | 990 | Data |
| 2020 | 990 | Data |
| 2019 | 990 | Data |
| 2018 | 990 | Data |
| 2017 | 990 | Data |
| 2016 | 990 | Data |
| 2015 | 990 | Data |
| 2014 | 990 | Data |
| 2013 | 990 | Data |
| 2012 | 990 | Data |
| 2011 | 990 | Data |
| 2010 | 990 | — |
| 2009 | 990 | — |
| 2008 | 990 | — |
| 2007 | 990 | — |
| 2006 | 990 | — |
| 2005 | 990 | — |
| 2004 | 990 | — |
| 2003 | 990 | — |
| 2002 | 990 | — |
| $0 |
| $35.4K |
| $175.4K |
| Danielle Solomon | Vp, Human Resources | 35 | $145.5K | $0 | $21K | $166.5K |
| Gregg Fortt | Vp, Regional Teams | 35 | $133K | $0 | $19.6K | $152.6K |
Danielle Solomon
Vp, Human Resources
$166.5K
Hrs/Wk
35
Compensation
$145.5K
Related Orgs
$0
Other
$21K
Gregg Fortt
Vp, Regional Teams
$152.6K
Hrs/Wk
35
Compensation
$133K
Related Orgs
$0
Other
$19.6K
| $0 |
| $0 |
| $0 |
| $0 |
| David Moore | Director | 1 | $0 | $0 | $0 | $0 |
| Elizabeth Corbett | Director | 1 | $0 | $0 | $0 | $0 |
| Greg Mayes | Director | 1 | $0 | $0 | $0 | $0 |
| James Mcalpin | Director | 1 | $0 | $0 | $0 | $0 |
| Joshua Golden | Director | 1 | $0 | $0 | $0 | $0 |
| Mary Weldon | Director | 1 | $0 | $0 | $0 | $0 |
| Matt Tifft | Director | 1 | $0 | $0 | $0 | $0 |
| Michael Mcdonnell | Director | 1 | $0 | $0 | $0 | $0 |
| Noah Richmond | Director | 1 | $0 | $0 | $0 | $0 |
| Rebekah Walker | Director | 1 | $0 | $0 | $0 | $0 |
| Ron Shimabuku | Director | 1 | $0 | $0 | $0 | $0 |
| Sarah Klein | Director | 1 | $0 | $0 | $0 | $0 |
| Wasim Malik | Director | 1 | $0 | $0 | $0 | $0 |
Camila Coelho
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Curtis Deprey
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
David Hawk
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
David Moore
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Elizabeth Corbett
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Greg Mayes
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
James Mcalpin
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Joshua Golden
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Mary Weldon
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Matt Tifft
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Michael Mcdonnell
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Noah Richmond
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Rebekah Walker
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Ron Shimabuku
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Sarah Klein
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0
Wasim Malik
Director
$0
Hrs/Wk
1
Compensation
$0
Related Orgs
$0
Other
$0