American Epilepsy Society

DISRUPTING DISPARITIES: DOCUMENTING AND ADDRESSING GAPS IN EPILEPSY CARE THROUGH HEALTHCARE PROVIDER EDUCATION AND TRAINING - SUMMARY: THE AMERICAN EPILEPSY SOCIETY (AES) PROPOSES TO IMPROVE OUTCOMES FOR UNDERSERVED PEOPLE WITH EPILEPSY (PWE) BY: (A) IMPROVING THE EPILEPSY CLINICAL KNOWLEDGE OF THE NON-SPECIALIST HEALTHCARE WORKFORCE AND (B) DEEPENING UNDERSTANDING OF SOCIAL DETERMINANTS OF HEALTH AND COMMITMENT TO EPILEPSY SELF-MANAGEMENT BY THE EPILEPSY SPECIALIST WORKFORCE. TOGETHER, THESE STRATEGIES IMPROVE THE CHANCES THAT WHEREVER UNDERSERVED PEOPLE WITH EPILEPSY MAY SEEK CARE, THEY ARE ENTERING A SYSTEM THAT OFFERS A PATHWAY TO ADEQUATE CLINICAL CARE AND COMMUNITY-BASED SERVICES THAT SUPPORT THEM IN MANAGING THEIR EPILEPSY AND OTHER SOCIAL DETERMINANTS IMPACTING THEIR HEALTH. THE PROJECT?S FIVE-YEAR GOAL IS TO PROVIDE EPILEPSY EDUCATION TO 500 TO 1000 NON-SPECIALIST HEALTHCARE PROVIDERS (HCPS) AND EDUCATION ON SOCIAL DETERMINANTS OF HEALTH AND EPILEPSY SELF-MANAGEMENT TO 300 TO 500 SPECIALIST AND NON-SPECIALIST HCPS.OUTCOMES: AES WILL PARTNER WITH THE DARTMOUTH COORDINATING CENTER FOR THE MANAGING EPILEPSY WELL NETWORK (DCC MEW) TO: (1) INCREASE KNOWLEDGE ABOUT EPILEPSY DIAGNOSIS, TREATMENT, AND MANAGEMENT; SEIZURE FIRST AID; EPILEPSY STIGMA; AND SOCIAL DETERMINANTS OF HEALTH FOR PWE AMONG NON-SPECIALIST HCPS WHO PROVIDE CLINICAL CARE TO PWE AND PROFESSIONALS WHO PROVIDE COMMUNITY-BASED SUPPORTIVE SERVICES TO PWE; AND (2) INCREASE UNDERSTANDING OF IMPACTS OF SOCIAL DETERMINANTS OF HEALTH AND AWARENESS AND USE OF EPILEPSY SELF-MANAGEMENT RESOURCES, TOOLS, AND PROGRAMS BY SPECIALIST AND NON-SPECIALIST HCPS AND THEIR PATIENTS. STRATEGIES: EDUCATION AND TRAINING WILL BE: (1) INFORMED BY A RIGOROUS NEEDS ASSESSMENT TO IDENTIFY THE KNOWLEDGE AND PRACTICE GAPS THAT IMPACT TREATMENT FOR UNDERSERVED PWE; (2) STRUCTURED IN A SERIES OF MODULES, WITH CONTENT TO BE ADDED BASED ON EVALUATION OF LEARNER NEEDS AND PROGRESS?USING THE STRATEGY THAT THE FIRST MODULE WILL MOTIVATE THE LEARNER TO (A) CONTINUE WITH THE EDUCATION; AND/OR (B) ASK OTHER HCPS AND NON-HCPS PROVIDING SUPP ORTIVE SERVICES TO PARTICIPATE IN THE EDUCATION, THEREBY GROWING THE POOL OF LEARNERS PLUS ADVOCATES AND CHAMPIONS FOR EPILEPSY SELF-MANAGEMENT PROGRAMS (IN ADDITION TO AES OUTREACH EFFORTS DIRECT TO HCPS NATIONWIDE AND WITHIN REGIONS); (3) DEEPENED BY MORE INTENSIVE EDUCATIONAL INTERVENTIONS IN THREE REGIONS?NASHVILLE, TN; ORLANDO, FL; AND LOS ANGELES, CA?THROUGH CONDUCTING A MORE IN-DEPTH NEEDS ASSESSMENT, OFFERING IN-PERSON EDUCATION, AND COORDINATING WITH IN-REGION COMMUNITY HEALTH LEADERS; (4) PROMOTED NATIONWIDE AND IN THE THREE TARGET REGIONS THROUGH PROFESSIONAL SOCIETIES AND COLLABORATION WITH THE ORGANIZATION AWARDED COMPONENT A FUNDING; (5) AUGMENTED WITH A SUITE OF EVIDENCE-BASED RESOURCES AVAILABLE THROUGH AES ONLINE; AND (6) EVALUATED THROUGH BOTH PROCESS AND OUTCOME EVALUATIONS, BUILDING ON EXISTING AES AND DCC MEW EVALUATION PROTOCOLS FOR CAPTURING PERFORMANCE MEASUREMENTS (E.G. # TRAINED; # REFERRALS) AND OUTCOMES (E.G. PRE- AND POST-TESTING, SELF-REPORTED PERFORMANCE IMPROVEMENTS).

PARTNERS AGAINST MORTALITY IN EPILEPSY (PAME) 2018 INTERNATIONAL MEETING

PARTNERS AGAINST MORTALITY IN EPILEPSY (PAME) 2016 INTERNATIONAL CONFERENCE